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Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
March 18, 2017
The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping
Deborah Friedman, Rachel W Linnemann, Lily L Altstein, et al.
Pediatric Pulmonology
|
October 15, 2025
Illness Burden in Adults With Cystic Fibrosis: Associations With Sex, Race/Ethnicity, and Socioeconomic Risk Factors
Stephanie DiFiglia, Anna M Georgiopoulos, Elizabeth K Seng, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
December 7, 2024
Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines
E P Dellon, G Allada, S J Allgood, et al.
Pediatric Pulmonology
|
June 27, 2024
Validation of the Integrated Palliative Care Outcome Scale (IPOS) in adults with cystic fibrosis
Anna M Georgiopoulos, Stephanie DiFiglia, Elizabeth K Seng, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
July 26, 2024
Wellness in the modulator era: An observational study of the impact of CFTR modulator therapy on the well-being of people with cystic fibrosis
Aricca D Van Citters, Enid Aliaj, Jessica A Alvarez, et al.
ERJ Open Research
|
March 25, 2026
ENHANCE: a community partnership charting the evolution of early-life cystic fibrosis disease manifestations in a new era of management
Don S Urquhart, Barry Linnane, Clare J Saunders, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
November 11, 2023
Palliative care needs among outpatient adults with cystic fibrosis: Baseline data from the Improving Life with CF trial
Stephanie DiFiglia, Anna M Georgiopoulos, Russell Portenoy, et al.
Journal of Patient Experience
|
March 20, 2023
Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences
Melissa J Basile, Lara Dhingra, Stephanie DiFiglia, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
March 14, 2024
Prioritizing sexual and reproductive health research and care for people with cystic fibrosis: A 2023 workshop report from the Cystic Fibrosis Foundation Sexual Health, Reproduction, and Gender (SHARING) Research Working Group
Traci M Kazmerski, Christie Moy, Enid Aliaj, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
December 21, 2023
Standards for the care of people with cystic fibrosis; establishing and maintaining health
Kevin W Southern, Charlotte Addy, Scott C Bell, et al.
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Search research articles
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Showing results (61-70 of 70) with videos related to
Sort By:
Page
of 7
You have reached the last page of results.
This site can display upto 70 results.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
March 18, 2017
The CF-CARES primary palliative care model: A CF-specific structured assessment of symptoms, distress, and coping
Deborah Friedman, Rachel W Linnemann, Lily L Altstein, et al.
Pediatric Pulmonology
|
October 15, 2025
Illness Burden in Adults With Cystic Fibrosis: Associations With Sex, Race/Ethnicity, and Socioeconomic Risk Factors
Stephanie DiFiglia, Anna M Georgiopoulos, Elizabeth K Seng, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
December 7, 2024
Addressing pain in people living with cystic fibrosis: Cystic fibrosis foundation evidence-informed guidelines
E P Dellon, G Allada, S J Allgood, et al.
Pediatric Pulmonology
|
June 27, 2024
Validation of the Integrated Palliative Care Outcome Scale (IPOS) in adults with cystic fibrosis
Anna M Georgiopoulos, Stephanie DiFiglia, Elizabeth K Seng, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
July 26, 2024
Wellness in the modulator era: An observational study of the impact of CFTR modulator therapy on the well-being of people with cystic fibrosis
Aricca D Van Citters, Enid Aliaj, Jessica A Alvarez, et al.
ERJ Open Research
|
March 25, 2026
ENHANCE: a community partnership charting the evolution of early-life cystic fibrosis disease manifestations in a new era of management
Don S Urquhart, Barry Linnane, Clare J Saunders, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
November 11, 2023
Palliative care needs among outpatient adults with cystic fibrosis: Baseline data from the Improving Life with CF trial
Stephanie DiFiglia, Anna M Georgiopoulos, Russell Portenoy, et al.
Journal of Patient Experience
|
March 20, 2023
Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences
Melissa J Basile, Lara Dhingra, Stephanie DiFiglia, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
March 14, 2024
Prioritizing sexual and reproductive health research and care for people with cystic fibrosis: A 2023 workshop report from the Cystic Fibrosis Foundation Sexual Health, Reproduction, and Gender (SHARING) Research Working Group
Traci M Kazmerski, Christie Moy, Enid Aliaj, et al.
Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society
|
December 21, 2023
Standards for the care of people with cystic fibrosis; establishing and maintaining health
Kevin W Southern, Charlotte Addy, Scott C Bell, et al.
Page
of 7