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Mahsa Shabani

Showing results (41-50 of 60) with videos related to

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Digital Health|October 6, 2023
Crowdsourcing smartphone data for biomedical research: Ethical and legal questionsMichael Lang, Kyle McKibbin, Mahsa Shabani, et al.
Frontiers in Genetics|May 22, 2020
Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in EuropeShaman Narayanasamy, Varvara Markina, Adrian Thorogood, et al.
Archives of Public Health = Archives Belges De Sante Publique|March 21, 2026
What patients value in data reuse for oncology research: a multi-stakeholder qualitative study to inform the European Health Data Space implementation in Belgium and beyondTeodora Lalova-Spinks, Ine van Zeeland, Silke Léonard, et al.
Science (New York, N.Y.)|March 26, 2016
RESEARCH ETHICS. Ethics review for international data-intensive researchEdward S Dove, David Townend, Eric M Meslin, et al.
BMC Medical Ethics|August 3, 2019
Model consent clauses for rare disease researchMinh Thu Nguyen, Jack Goldblatt, Rosario Isasi, et al.
IRB|August 9, 2018
Recontacting Pediatric Research Participants for Consent When They Reach the Age of MajorityBartha Maria Knoppers, Karine Sénécal, Joanne Boisjoli, et al.
BMC Medical Ethics|May 1, 2021
Ethics review of big data research: What should stay and what should be reformed?Agata Ferretti, Marcello Ienca, Mark Sheehan, et al.
European Journal of Human Genetics : EJHG|June 15, 2023
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratoryAlexander Bernier, Fruzsina Molnár-Gábor, Bartha M Knoppers, et al.
Journal of Community Genetics|September 28, 2017
The challenges of the expanded availability of genomic information: an agenda-setting paperPascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, et al.
Health Policy (Amsterdam, Netherlands)|July 3, 2023
The European health data space: Too big to succeed?Luca Marelli, Marthe Stevens, Tamar Sharon, et al.
Pageof 6

Showing results (41-50 of 60) with videos related to

Sort By:
Pageof 6
Digital Health|October 6, 2023
Crowdsourcing smartphone data for biomedical research: Ethical and legal questionsMichael Lang, Kyle McKibbin, Mahsa Shabani, et al.
Frontiers in Genetics|May 22, 2020
Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in EuropeShaman Narayanasamy, Varvara Markina, Adrian Thorogood, et al.
Archives of Public Health = Archives Belges De Sante Publique|March 21, 2026
What patients value in data reuse for oncology research: a multi-stakeholder qualitative study to inform the European Health Data Space implementation in Belgium and beyondTeodora Lalova-Spinks, Ine van Zeeland, Silke Léonard, et al.
Science (New York, N.Y.)|March 26, 2016
RESEARCH ETHICS. Ethics review for international data-intensive researchEdward S Dove, David Townend, Eric M Meslin, et al.
BMC Medical Ethics|August 3, 2019
Model consent clauses for rare disease researchMinh Thu Nguyen, Jack Goldblatt, Rosario Isasi, et al.
IRB|August 9, 2018
Recontacting Pediatric Research Participants for Consent When They Reach the Age of MajorityBartha Maria Knoppers, Karine Sénécal, Joanne Boisjoli, et al.
BMC Medical Ethics|May 1, 2021
Ethics review of big data research: What should stay and what should be reformed?Agata Ferretti, Marcello Ienca, Mark Sheehan, et al.
European Journal of Human Genetics : EJHG|June 15, 2023
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratoryAlexander Bernier, Fruzsina Molnár-Gábor, Bartha M Knoppers, et al.
Journal of Community Genetics|September 28, 2017
The challenges of the expanded availability of genomic information: an agenda-setting paperPascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, et al.
Health Policy (Amsterdam, Netherlands)|July 3, 2023
The European health data space: Too big to succeed?Luca Marelli, Marthe Stevens, Tamar Sharon, et al.
Pageof 6