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Journal of Scleroderma and Related Disorders
|
November 18, 2024
Association of support group leader experience with Scleroderma Patient-centered Intervention Network Support group Leader EDucation Program outcomes: Secondary analysis of a two-arm parallel partially nested randomized controlled trial
Brett D Thombs, Brooke Levis, Marie-Eve Carrier, et al.
Journal of Scleroderma and Related Disorders
|
April 6, 2022
Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey
Mia Pépin, Linda Kwakkenbos, Marie-Eve Carrier, et al.
ACR Open Rheumatology
|
April 6, 2026
Development and Validation of the Brief Support Group Leader Self-Efficacy Scale Among Scleroderma Peer Support Group Leaders
Sabrina Provencher, Daphna Harel, Richard S Henry, et al.
Trials
|
November 13, 2025
Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network-Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial
Elsa-Lynn Nassar, Amanda Wurz, Marie-Eve Carrier, et al.
Disability and Rehabilitation
|
September 17, 2019
Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys
Linda Kwakkenbos, Andrea Carboni-Jiménez, Marie-Eve Carrier, et al.
Disability and Rehabilitation
|
August 21, 2018
Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study
Mara Cañedo-Ayala, Danielle B Rice, Brooke Levis, et al.
Disability and Rehabilitation
|
January 31, 2019
Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey
Danielle B Rice, Mara Cañedo-Ayala, Andrea Carboni-Jiménez, et al.
BMJ Open
|
October 13, 2020
Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma atient-centred Intervention Network (SPIN) Cohort Study
Sophia J Sommer, Daphna Harel, Linda Kwakkenbos, et al.
Clinical and Experimental Rheumatology
|
April 21, 2023
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study
Richard S Henry, Linda Kwakkenbos, Marie-Eve Carrier, et al.
BMJ Open
|
February 25, 2019
Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort
Daphna Harel, Sarah D Mills, Linda Kwakkenbos, et al.
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Search research articles
Search
Showing results (11-20 of 90) with videos related to
Sort By:
Page
of 9
Journal of Scleroderma and Related Disorders
|
November 18, 2024
Association of support group leader experience with Scleroderma Patient-centered Intervention Network Support group Leader EDucation Program outcomes: Secondary analysis of a two-arm parallel partially nested randomized controlled trial
Brett D Thombs, Brooke Levis, Marie-Eve Carrier, et al.
Journal of Scleroderma and Related Disorders
|
April 6, 2022
Reasons for attending support groups and organizational preferences: A replication study using the North American Scleroderma Support Group Survey
Mia Pépin, Linda Kwakkenbos, Marie-Eve Carrier, et al.
ACR Open Rheumatology
|
April 6, 2026
Development and Validation of the Brief Support Group Leader Self-Efficacy Scale Among Scleroderma Peer Support Group Leaders
Sabrina Provencher, Daphna Harel, Richard S Henry, et al.
Trials
|
November 13, 2025
Protocol for a two-arm parallel randomized controlled trial to evaluate patient and researcher co-presentation of research results: the Scleroderma Patient-centered Intervention Network-Patients Alongside Investigators in Research-Sharing (SPIN-PAIRS) trial
Elsa-Lynn Nassar, Amanda Wurz, Marie-Eve Carrier, et al.
Disability and Rehabilitation
|
September 17, 2019
Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys
Linda Kwakkenbos, Andrea Carboni-Jiménez, Marie-Eve Carrier, et al.
Disability and Rehabilitation
|
August 21, 2018
Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study
Mara Cañedo-Ayala, Danielle B Rice, Brooke Levis, et al.
Disability and Rehabilitation
|
January 31, 2019
Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey
Danielle B Rice, Mara Cañedo-Ayala, Andrea Carboni-Jiménez, et al.
BMJ Open
|
October 13, 2020
Assessing differential item functioning for the Social Appearance Anxiety Scale: a Scleroderma atient-centred Intervention Network (SPIN) Cohort Study
Sophia J Sommer, Daphna Harel, Linda Kwakkenbos, et al.
Clinical and Experimental Rheumatology
|
April 21, 2023
Mental health symptoms in scleroderma during COVID-19: a Scleroderma Patient-centred Intervention Network (SPIN) cohort longitudinal study
Richard S Henry, Linda Kwakkenbos, Marie-Eve Carrier, et al.
BMJ Open
|
February 25, 2019
Shortening patient-reported outcome measures through optimal test assembly: application to the Social Appearance Anxiety Scale in the Scleroderma Patient-centered Intervention Network Cohort
Daphna Harel, Sarah D Mills, Linda Kwakkenbos, et al.
Page
of 9