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Journal of Thrombosis and Haemostasis : JTH|June 23, 2023
Hemophilia gene therapy: first, do no harmLeonard A Valentino, Radoslaw Kaczmarek, Glenn F Pierce, et al.
Advances in Therapy|March 24, 2026
Estimating the Impact of Hemophilia A Treatment Administration on Patient Health Utility: Combining a Discrete Choice Experiment with Time Trade-Off MethodMelody S Benton, Dongzhe Hong, Mark W Skinner, et al.
The Canadian Journal of Nursing Research = Revue Canadienne De Recherche En Sciences Infirmieres|May 8, 2008
Services for seniors in small-town Canada: the paradox of communityMark W Skinner, Mark W Rosenberg, Sarah A Lovell, et al.
BMJ Open|April 17, 2020
Collaborating with healthcare providers to understand their perspectives on a hospital-to-home warning signs intervention for rural transitional care: protocol of a multimethod descriptive studyMary T Fox, Jeffrey I Butler, Souraya Sidani, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|August 28, 2025
Feasibility of Administering the Patient Reported Outcomes, Burdens and Experiences (PROBE) Questionnaire Through the Canadian Bleeding Disorders Registry (CBDR) and Comparison of Data From the Two SourcesFederico Germini, Carlo Cossa, Elisabetta Trinari, et al.
JMIR Human Factors|March 2, 2022
User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods StudyFederico Germini, Victoria Borg Debono, David Page, et al.
American Journal of Medical Genetics. Part C, Seminars in Medical Genetics|January 3, 2023
Data sharing to advance gene-targeted therapies in rare diseasesJulie Lekstrom-Himes, Erika F Augustine, Amy Brower, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|October 5, 2024
Development of the World Federation of Hemophilia Shared Decision-Making ToolDonna Coffin, Mark W Skinner, Courtney D Thornburg, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|February 28, 2026
Implementing Shared Decision-Making in Haemophilia Care: Best Practice Recommendations From a Western European Multi-Stakeholder Delphi ProcessDonna Coffin, Robert Klamroth, Miguel Crato, et al.
Plos One|May 5, 2025
Healthcare professionals' perspectives on barriers and facilitators to implementing a warning signs intervention for older rural-dwelling medical patients at risk for hospital readmissionMary T Fox, Jeffrey I Butler, Adam M B Day, et al.
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