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Haemophilia : the Official Journal of the World Federation of Hemophilia|February 17, 2021
Evidence of a disability paradox in patient-reported outcomes in haemophiliaJamie O'Hara, Antony P Martin, Diane Nugent, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|September 2, 2020
Non-severe haemophilia: Is it benign? - Insights from the PROBE studyChatree Chai-Adisaksopha, Declan Noone, Randall Curtis, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|March 4, 2024
Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) studyRandall Curtis, Joanne Wu, Alfonso Iorio, et al.
BMJ Open|August 11, 2018
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaireChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.
Implementation Science Communications|July 23, 2021
Optimizing hospital-to-home transitions for older persons in rural communities: a participatory, multimethod study protocolMary T Fox, Souraya Sidani, Jeffrey I Butler, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|December 7, 2018
Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domainsChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|March 13, 2019
Exploring regional variations in the cross-cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) studyChatree Chai-Adisaksopha, Mark W Skinner, Randall Curtis, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|September 6, 2024
Development of the coreHEM mental health patient-reported outcome measure - A novel mental health outlook measure for people with haemophiliaElizabeth Clearfield, Hsing-Yuan Chang, Ellen M Janssen, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|October 23, 2020
Challenges and key lessons from the design and implementation of an international haemophilia registry supported by a pharmaceutical companyCharles R M Hay, Midori Shima, Michael Makris, et al.
Haemophilia : the Official Journal of the World Federation of Hemophilia|June 5, 2020
The World Federation of Hemophilia Annual Global Survey 1999-2018Jeffrey S Stonebraker, Paula H B Bolton-Maggs, Mark Brooker, et al.
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