Showing results (1-10 of 5) with videos related to
Sort By:
Pageof 1
Journal of Community Genetics|April 22, 2021
Our greatest untapped resource: our patientsMatt Bolz-Johnson, Tom Kenny, Yann Le Cam, et al.Med (New York, N.Y.)|February 10, 2024
Rare Disease Day: Amplifying voices, advocating hopeHelene Cederroth, William A Gahl, Guida Landouré, et al.Endocrine Connections|October 13, 2022
Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseasesSusan M Webb, Jette Kristensen, Anna Nordenström, et al.Orphanet Journal of Rare Diseases|September 5, 2023
Together4RD position statement on collaboration between European reference networks and industryVictoria Hedley, Matt Bolz-Johnson, Ines Hernando, et al.The Lancet. Global Health|June 14, 2024
Global health for rare diseases through primary careGareth Baynam, Adam L Hartman, Mary Catherine V Letinturier, et al.Pageof 1