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Journal of Autism and Developmental Disorders|September 20, 2014
DSM-5 changes and the prevalence of parent-reported autism spectrum symptoms in Fragile X syndromeAnne C Wheeler, Joanna Mussey, Adrienne Villagomez, et al.
Plos One|October 24, 2019
Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disabilityLauren A McCormack, Amanda Wylie, Rebecca Moultrie, et al.
JAMIA Open|May 5, 2025
Assessing the acceptability of using patient portals to recruit pregnant women and new mothers for maternal-child health researchSean N Halpin, Rebecca Wright, Angela Gwaltney, et al.
Disability and Health Journal|May 4, 2020
Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorderLaura Wagner, MaryKate Frisch, Lauren Turner-Brown, et al.
JMIR Research Protocols|June 8, 2018
A Digital Decision Support Tool to Enhance Decisional Capacity for Clinical Trial Consent: Design and DevelopmentRobert D Furberg, Alexa M Ortiz, Rebecca R Moultrie, et al.
Journal of Developmental and Behavioral Pediatrics : JDBP|September 29, 2015
Examining Parents' Experiences and Information Needs Regarding Early Identification of Developmental Delays: Qualitative Research to Inform a Public Health CampaignMelissa Raspa, Denise M Levis, Julia Kish-Doto, et al.
American Journal on Intellectual and Developmental Disabilities|November 9, 2017
Attendance at Fragile X Specialty Clinics: Facilitators and BarriersSharon A Kidd, Melissa Raspa, Renée Clark, et al.
Journal of Autism and Developmental Disorders|March 3, 2019
Decisional Capacity for Informed Consent in Males and Females with Fragile X SyndromeAnne C Wheeler, Amanda Wylie, Melissa Raspa, et al.
European Journal of Human Genetics : EJHG|March 27, 2023
Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screeningMelissa Raspa, Oksana Kutsa, Sara M Andrews, et al.
Journal of the American Medical Informatics Association : JAMIA|January 9, 2020
"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health recordSara M Andrews, Melissa Raspa, Anne Edwards, et al.
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