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Clinical Psychology & Psychotherapy|September 30, 2017
Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stressNeuza Silva, Monika Bullinger, Rachel Sommer, et al.
Orphanet Journal of Rare Diseases|August 11, 2019
Quality of life of children with achondroplasia and their parents - a German cross-sectional studyStefanie Witt, Beate Kolb, Janika Bloemeke, et al.
Disability and Rehabilitation|September 17, 2016
An ICF-CY-based approach to assessing self- and observer-reported functioning in young persons with achondroplasia - development of the pilot version of the Achondroplasia Personal Life Experience Scale (APLES)Rachel Sommer, Janika Blömeke, Michaela Dabs, et al.
Patient Related Outcome Measures|July 26, 2022
Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene TherapyJennifer Quinn, Kathleen A Delaney, Wing Yen Wong, et al.
Psychotherapie, Psychosomatik, Medizinische Psychologie|February 15, 2013
[Psychological distress in adults with neurofibromatosis type 1: a longitudinal study]Christoph Reichardt, Angela Scherwath, Victor Felix Mautner, et al.
Value in Health : the Journal of the International Society for Pharmacoeconomics and Outcomes Research|June 4, 2009
Challenges of patient-reported outcome assessment in hemophilia care—a state of the art reviewMonika Bullinger, Denise Globe, Joan Wasserman, et al.
Psycho-Social Medicine|September 11, 2009
The assessment of mood at workplace - psychometric analyses of the revised Profile of Mood States (POMS) questionnaireMatthias Morfeld, Corinna Petersen, Anja Krüger-Bödeker, et al.
International Journal of Geriatric Psychiatry|November 17, 2007
The patient with dementia, the caregiver and the doctor: cognition, depression and quality of life from three perspectivesSönke Arlt, Juliane Hornung, M Eichenlaub, et al.
Health and Quality of Life Outcomes|November 15, 2005
The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescentsRolanda M Baars, Clare I Atherton, Hendrik M Koopman, et al.
The Journal of Pediatrics|August 7, 2013
Psychological and quality of life outcomes in pediatric populations: a parent-child perspectiveHelena Moreira, Carlos Carona, Neuza Silva, et al.
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