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Neuromuscular Disorders : NMD|June 18, 2023
267th ENMC International workshop: psychological interventions for improving quality of life in slowly progressive neuromuscular disordersRonne Pater, Joana Garmendia, Benjamin Gallais, et al.Neurology|April 3, 2016
Quantitative MRI reveals decelerated fatty infiltration in muscles of active FSHD patientsBarbara Janssen, Nicoline Voet, Alexander Geurts, et al.Neurology|October 24, 2014
Both aerobic exercise and cognitive-behavioral therapy reduce chronic fatigue in FSHD: an RCTNicoline Voet, Gijs Bleijenberg, Jan Hendriks, et al.European Journal of Applied Physiology|July 2, 2026
Physical exercise in facioscapulohumeral muscular dystrophy: state of the art and future challenges beyond common misconceptionsOscar Crisafulli, Matteo Fortunati, Fabrizio Brindisi, et al.Journal of Neuromuscular Diseases|March 22, 2024
Patient-Reported Outcome Measures in Neuromuscular Diseases: A Scoping ReviewNicoline Voet, Ronne Pater, Joana Garmendia, et al.JMIR Formative Research|September 13, 2022
Objective Monitoring of Facioscapulohumeral Dystrophy During Clinical Trials Using a Smartphone App and Wearables: Observational StudyGhobad Maleki, Ahnjili Zhuparris, Ingrid Koopmans, et al.Neuromuscular Disorders : NMD|July 22, 2026
Living with FSHD: a patient-led narrative review of psychosocial well-being in facioscapulohumeral muscular dystrophyKent Drescher, Marnix van Bruggen, Tatiana Garcia Bosquez, et al.JMIR Formative Research|March 15, 2023
Smartphone and Wearable Sensors for the Estimation of Facioscapulohumeral Muscular Dystrophy Disease Severity: Cross-sectional StudyAhnjili Zhuparris, Ghobad Maleki, Ingrid Koopmans, et al.Disability and Rehabilitation|November 11, 2024
Experiences of living with GSD5 (McArdle) disease: challenges and strategies. A qualitative study in the NetherlandsRonne van Haaren-Pater, Walaa Karazi, Daphne Maas, et al.Physical Therapy|May 7, 2016
Consensus on Exercise Reporting Template (CERT): Modified Delphi StudySusan C Slade, Clermont E Dionne, Martin Underwood, et al.Pageof 1