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Neuromuscular Disorders : NMD
|
March 9, 2010
Best practice in Duchenne muscular dystrophy
Filippo Buccella, Pat Furlong, Sally Hofmeister, et al.
Therapeutic Innovation & Regulatory Science
|
July 21, 2025
Transforming Objective Participatory Patient Advocacy
Pat Furlong, Timothy R Franson, Peter J Pitts
Frontiers in Medicine
|
June 6, 2019
Improving the Translational Medicine Process: Moving Patients From "End-Users" to "Engaged Collaborators"
Manuela Battaglia, Pat Furlong, Nico Martinus Wulffraat, et al.
Genetic Testing and Molecular Biomarkers
|
September 22, 2010
Trust it or trash it? a tool for evaluating the quality of genetic information
Joseph D McInerney, Mark S Boguski, Pat Furlong, et al.
Muscle & Nerve
|
October 2, 2019
Delays in diagnosis of Duchenne muscular dystrophy: An evaluation of genotypic and sociodemographic factors
Kevin J Counterman, Pat Furlong, Richard T Wang, et al.
Neuromuscular Disorders : NMD
|
May 3, 2016
1st Workshop on Upper-Extremity Assistive Technology for People with Duchenne: State of the art, emerging avenues, and challenges: April 27th 2015, London, United Kingdom
Arjen Bergsma, Joan Lobo-Prat, Elizabeth Vroom, et al.
European Journal of Human Genetics : EJHG
|
August 27, 2015
Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy
Holly L Peay, Bettina Meiser, Kathleen Kinnett, et al.
Plos Currents
|
September 3, 2015
Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy
Kathi Kinnett, Sunil Rodger, Elizabeth Vroom, et al.
The Patient
|
October 21, 2020
Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates
Elisabeth M Oehrlein, Jason Harris, Alan Balch, et al.
Health and Quality of Life Outcomes
|
July 27, 2021
Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy
Hannah Staunton, Claire Trennery, Rob Arbuckle, et al.
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of 3
Search research articles
Search
Showing results (1-10 of 26) with videos related to
Sort By:
Page
of 3
Neuromuscular Disorders : NMD
|
March 9, 2010
Best practice in Duchenne muscular dystrophy
Filippo Buccella, Pat Furlong, Sally Hofmeister, et al.
Therapeutic Innovation & Regulatory Science
|
July 21, 2025
Transforming Objective Participatory Patient Advocacy
Pat Furlong, Timothy R Franson, Peter J Pitts
Frontiers in Medicine
|
June 6, 2019
Improving the Translational Medicine Process: Moving Patients From "End-Users" to "Engaged Collaborators"
Manuela Battaglia, Pat Furlong, Nico Martinus Wulffraat, et al.
Genetic Testing and Molecular Biomarkers
|
September 22, 2010
Trust it or trash it? a tool for evaluating the quality of genetic information
Joseph D McInerney, Mark S Boguski, Pat Furlong, et al.
Muscle & Nerve
|
October 2, 2019
Delays in diagnosis of Duchenne muscular dystrophy: An evaluation of genotypic and sociodemographic factors
Kevin J Counterman, Pat Furlong, Richard T Wang, et al.
Neuromuscular Disorders : NMD
|
May 3, 2016
1st Workshop on Upper-Extremity Assistive Technology for People with Duchenne: State of the art, emerging avenues, and challenges: April 27th 2015, London, United Kingdom
Arjen Bergsma, Joan Lobo-Prat, Elizabeth Vroom, et al.
European Journal of Human Genetics : EJHG
|
August 27, 2015
Mothers' psychological adaptation to Duchenne/Becker muscular dystrophy
Holly L Peay, Bettina Meiser, Kathleen Kinnett, et al.
Plos Currents
|
September 3, 2015
Imperatives for DUCHENNE MD: a Simplified Guide to Comprehensive Care for Duchenne Muscular Dystrophy
Kathi Kinnett, Sunil Rodger, Elizabeth Vroom, et al.
The Patient
|
October 21, 2020
Improving Access and Quality of Health Care in the United States: Shared Goals Among Patient Advocates
Elisabeth M Oehrlein, Jason Harris, Alan Balch, et al.
Health and Quality of Life Outcomes
|
July 27, 2021
Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy
Hannah Staunton, Claire Trennery, Rob Arbuckle, et al.
Page
of 3