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Journal of Personalized Medicine|June 14, 2016
Implementation of Electronic Consent at a Biobank: An Opportunity for Precision Medicine ResearchNatalie T Boutin, Kathleen Mathieu, Alison G Hoffnagle, et al.Learning Health Systems|October 31, 2025
Disentangling informing participants from obtaining their consentPatricia Pearl O'Rourke, Joseph Ali, Judith Carrithers, et al.Human Gene Therapy|March 28, 2026
Ethical and Regulatory Considerations for Developing Gene Therapies Involving Genome EditingPishoy Gouda, Lauren Cohen, Keith Berelowitz, et al.Genetics in Medicine : Official Journal of the American College of Medical Genetics|September 1, 2017
Navigating the research-clinical interface in genomic medicine: analysis from the CSER ConsortiumSusan M Wolf, Laura M Amendola, Jonathan S Berg, et al.The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics|October 20, 2015
Returning a Research Participant's Genomic Results to Relatives: Analysis and RecommendationsSusan M Wolf, Rebecca Branum, Barbara A Koenig, et al.The Hastings Center Report|December 9, 2022
Clarifying the Ethics and Oversight of Chimeric ResearchJosephine Johnston, Insoo Hyun, Carolyn P Neuhaus, et al.The American Journal of Bioethics : AJOB|May 8, 2023
Returning Individual Research Results from Digital Phenotyping in PsychiatryFrancis X Shen, Matthew L Baum, Nicole Martinez-Martin, et al.NPJ Genomic Medicine|October 31, 2023
Returning incidentally discovered Hepatitis C RNA-seq results to COPDGene study participantsEdwin K Silverman, Arthur Y Kim, Barry J Make, et al.Circulation. Cardiovascular Genetics|December 16, 2010
Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group, Richard R Fabsitz, Amy McGuire, et al.Science Translational Medicine|June 5, 2015
Global implementation of genomic medicine: We are not aloneTeri A Manolio, Marc Abramowicz, Fahd Al-Mulla, et al.Pageof 3