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Advances in Experimental Medicine and Biology
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September 9, 2010
Patient registries: utility, validity and inference
Rachel Richesson, Kendra Vehik
Orphanet Journal of Rare Diseases
|
February 24, 2026
A practical framework to approach the development and evaluation of patient registries for rare diseases
Maya S Vaishnaw, Rachel Richesson
Journal of Library Metadata
|
November 9, 2010
[RD] PRISM Library: Patient Registry Item Specifications and Metadata for Rare Diseases
Rachel Richesson, Denise Shereff, James Andrews
International Journal of Medical Informatics
|
February 10, 2007
Trans-atlantic data harmonization in the classification of medicines and dietary supplements: a challenge for epidemiologic study and clinical research
Susan Moyers, Rachel Richesson, Jeffrey Krischer
Learning Health Systems
|
June 28, 2019
Data and knowledge standards for learning health: A population management example using chronic kidney disease
Blake Cameron, Brian Douthit, Rachel Richesson
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
May 9, 2015
Coverage of rare disease names in standard terminologies and implications for patients, providers, and research
Kin Wah Fung, Rachel Richesson, Olivier Bodenreider
Journal of Biomedical Informatics
|
December 26, 2009
Formal representation of eligibility criteria: a literature review
Chunhua Weng, Samson W Tu, Ida Sim, et al.
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
November 13, 2008
SNOMED CT coding variation and grouping for "other findings" in a longitudinal study on urea cycle disorders
Timothy B Patrick, Rachel Richesson, James E Andrews, et al.
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
December 24, 2011
Demonstrating "collect once, use many"--assimilating public health secondary data use requirements into an existing Domain Analysis Model
Cynthia Barton, Crystal Kallem, Patricia Van Dyke, et al.
Studies in Health Technology and Informatics
|
October 4, 2007
A web-based SNOMED CT browser: distributed and real-time use of SNOMED CT during the clinical research process
Rachel Richesson, Asif Syed, Heather Guillette, et al.
Page
of 4
Search research articles
Search
Showing results (1-10 of 31) with videos related to
Sort By:
Page
of 4
Advances in Experimental Medicine and Biology
|
September 9, 2010
Patient registries: utility, validity and inference
Rachel Richesson, Kendra Vehik
Orphanet Journal of Rare Diseases
|
February 24, 2026
A practical framework to approach the development and evaluation of patient registries for rare diseases
Maya S Vaishnaw, Rachel Richesson
Journal of Library Metadata
|
November 9, 2010
[RD] PRISM Library: Patient Registry Item Specifications and Metadata for Rare Diseases
Rachel Richesson, Denise Shereff, James Andrews
International Journal of Medical Informatics
|
February 10, 2007
Trans-atlantic data harmonization in the classification of medicines and dietary supplements: a challenge for epidemiologic study and clinical research
Susan Moyers, Rachel Richesson, Jeffrey Krischer
Learning Health Systems
|
June 28, 2019
Data and knowledge standards for learning health: A population management example using chronic kidney disease
Blake Cameron, Brian Douthit, Rachel Richesson
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
May 9, 2015
Coverage of rare disease names in standard terminologies and implications for patients, providers, and research
Kin Wah Fung, Rachel Richesson, Olivier Bodenreider
Journal of Biomedical Informatics
|
December 26, 2009
Formal representation of eligibility criteria: a literature review
Chunhua Weng, Samson W Tu, Ida Sim, et al.
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
November 13, 2008
SNOMED CT coding variation and grouping for "other findings" in a longitudinal study on urea cycle disorders
Timothy B Patrick, Rachel Richesson, James E Andrews, et al.
AMIA ... Annual Symposium Proceedings. AMIA Symposium
|
December 24, 2011
Demonstrating "collect once, use many"--assimilating public health secondary data use requirements into an existing Domain Analysis Model
Cynthia Barton, Crystal Kallem, Patricia Van Dyke, et al.
Studies in Health Technology and Informatics
|
October 4, 2007
A web-based SNOMED CT browser: distributed and real-time use of SNOMED CT during the clinical research process
Rachel Richesson, Asif Syed, Heather Guillette, et al.
Page
of 4