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Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
April 26, 2022
A randomized, placebo-controlled clinical trial evaluating olipudase alfa enzyme replacement therapy for chronic acid sphingomyelinase deficiency (ASMD) in adults: One-year results
Melissa Wasserstein, Robin Lachmann, Carla Hollak, et al.
Journal of Inherited Metabolic Disease
|
April 28, 2026
Adults With Acid Sphingomyelinase Deficiency Have Sustained Improvements in Clinical Outcomes With up to 5 Years of Olipudase Alfa Enzyme Replacement Therapy: ASCEND Trial Final Results
Melissa P Wasserstein, Carla E Hollak, Antonio Barbato, et al.
Orphanet Journal of Rare Diseases
|
December 2, 2023
Continued improvement in disease manifestations of acid sphingomyelinase deficiency for adults with up to 2 years of olipudase alfa treatment: open-label extension of the ASCEND trial
Melissa P Wasserstein, Robin Lachmann, Carla Hollak, et al.
The Lancet. Neurology
|
January 21, 2023
Safety and efficacy of leriglitazone for preventing disease progression in men with adrenomyeloneuropathy (ADVANCE): a randomised, double-blind, multi-centre, placebo-controlled phase 2-3 trial
Wolfgang Köhler, Marc Engelen, Florian Eichler, et al.
Epilepsia
|
March 30, 2023
Natural history of epilepsy in argininosuccinic aciduria provides new insights into pathophysiology: A retrospective international study
Nour Elkhateeb, Giorgia Olivieri, Barbara Siri, et al.
Orphanet Journal of Rare Diseases
|
January 27, 2016
Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks
Carla E M Hollak, Marieke Biegstraaten, Matthias R Baumgartner, et al.
Blood
|
November 16, 2013
Altered distribution and function of natural killer cells in murine and human Niemann-Pick disease type C1
Anneliese O Speak, Danielle Te Vruchte, Lianne C Davis, et al.
JIMD Reports
|
February 23, 2013
Recommendations on reintroduction of agalsidase Beta for patients with fabry disease in europe, following a period of shortage
Gabor E Linthorst, Alessandro P Burlina, Franco Cecchi, et al.
Journal of Inherited Metabolic Disease
|
March 3, 2017
Expanding the phenotype in argininosuccinic aciduria: need for new therapies
Julien Baruteau, Elisabeth Jameson, Andrew A Morris, et al.
Calcified Tissue International
|
June 6, 2019
Continued Beneficial Effects of Burosumab in Adults with X-Linked Hypophosphatemia: Results from a 24-Week Treatment Continuation Period After a 24-Week Double-Blind Placebo-Controlled Period
Anthony A Portale, Thomas O Carpenter, Maria Luisa Brandi, et al.
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of 6
Search research articles
Search
Showing results (41-50 of 55) with videos related to
Sort By:
Page
of 6
Genetics in Medicine : Official Journal of the American College of Medical Genetics
|
April 26, 2022
A randomized, placebo-controlled clinical trial evaluating olipudase alfa enzyme replacement therapy for chronic acid sphingomyelinase deficiency (ASMD) in adults: One-year results
Melissa Wasserstein, Robin Lachmann, Carla Hollak, et al.
Journal of Inherited Metabolic Disease
|
April 28, 2026
Adults With Acid Sphingomyelinase Deficiency Have Sustained Improvements in Clinical Outcomes With up to 5 Years of Olipudase Alfa Enzyme Replacement Therapy: ASCEND Trial Final Results
Melissa P Wasserstein, Carla E Hollak, Antonio Barbato, et al.
Orphanet Journal of Rare Diseases
|
December 2, 2023
Continued improvement in disease manifestations of acid sphingomyelinase deficiency for adults with up to 2 years of olipudase alfa treatment: open-label extension of the ASCEND trial
Melissa P Wasserstein, Robin Lachmann, Carla Hollak, et al.
The Lancet. Neurology
|
January 21, 2023
Safety and efficacy of leriglitazone for preventing disease progression in men with adrenomyeloneuropathy (ADVANCE): a randomised, double-blind, multi-centre, placebo-controlled phase 2-3 trial
Wolfgang Köhler, Marc Engelen, Florian Eichler, et al.
Epilepsia
|
March 30, 2023
Natural history of epilepsy in argininosuccinic aciduria provides new insights into pathophysiology: A retrospective international study
Nour Elkhateeb, Giorgia Olivieri, Barbara Siri, et al.
Orphanet Journal of Rare Diseases
|
January 27, 2016
Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks
Carla E M Hollak, Marieke Biegstraaten, Matthias R Baumgartner, et al.
Blood
|
November 16, 2013
Altered distribution and function of natural killer cells in murine and human Niemann-Pick disease type C1
Anneliese O Speak, Danielle Te Vruchte, Lianne C Davis, et al.
JIMD Reports
|
February 23, 2013
Recommendations on reintroduction of agalsidase Beta for patients with fabry disease in europe, following a period of shortage
Gabor E Linthorst, Alessandro P Burlina, Franco Cecchi, et al.
Journal of Inherited Metabolic Disease
|
March 3, 2017
Expanding the phenotype in argininosuccinic aciduria: need for new therapies
Julien Baruteau, Elisabeth Jameson, Andrew A Morris, et al.
Calcified Tissue International
|
June 6, 2019
Continued Beneficial Effects of Burosumab in Adults with X-Linked Hypophosphatemia: Results from a 24-Week Treatment Continuation Period After a 24-Week Double-Blind Placebo-Controlled Period
Anthony A Portale, Thomas O Carpenter, Maria Luisa Brandi, et al.
Page
of 6