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Journal of Neuromuscular Diseases
|
May 14, 2023
A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy
Ryan Fischer, Katherine Porter, Joanne M Donovan, et al.
Expert Review of Pharmacoeconomics & Outcomes Research
|
May 10, 2019
The evolving role of patient preference studies in health-care decision-making, from clinical drug development to clinical care management
Yanina Jackson, Ellen Janssen, Ryan Fischer, et al.
Orphanet Journal of Rare Diseases
|
February 22, 2025
The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey
John Jarvis, Elizabeth Chertavian, Marric Buessing, et al.
Transplantation
|
July 9, 2020
Big Data in Transplantation Practice-the Devil Is in the Detail-Fontan-associated Liver Disease
Michelle H Kim, Ailene Nguyen, Mary Lo, et al.
Journal of Pediatric Gastroenterology and Nutrition
|
July 13, 2022
Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation: A Position Paper by the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition
Jennifer Vittorio, Beverly Kosmach-Park, Lindsay Y King, et al.
Journal of Neuromuscular Diseases
|
February 16, 2024
Draft Guidance for Industry Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Related Dystrophinopathies - Developing Potential Treatments for the Entire Spectrum of Disease
Craig McDonald, Eric Camino, Rafael Escandon, et al.
Circulation
|
August 11, 2020
Fontan-Associated Liver Disease: Screening, Management, and Transplant Considerations
Juliet Emamaullee, Ali N Zaidi, Thomas Schiano, et al.
Plos One
|
May 3, 2019
Gene therapy as a potential therapeutic option for Duchenne muscular dystrophy: A qualitative preference study of patients and parents
Holly Landrum Peay, Ryan Fischer, Janice P Tzeng, et al.
Orphanet Journal of Rare Diseases
|
June 25, 2015
How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration
Pat Furlong, John F P Bridges, Lawrence Charnas, et al.
Chiropractic & Manual Therapies
|
December 10, 2025
Which lumbar spinal stenosis patients will improve with nonsurgical treatment? A secondary analysis of a randomized controlled trial
Eric J Roseen, Clair N Smith, Asifa Rahim, et al.
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of 8
Search research articles
Search
Showing results (51-60 of 73) with videos related to
Sort By:
Page
of 8
Journal of Neuromuscular Diseases
|
May 14, 2023
A Mixed-Method Study Exploring Patient-Experienced and Caregiver-Reported Benefits and Side Effects of Corticosteroid Use in Duchenne Muscular Dystrophy
Ryan Fischer, Katherine Porter, Joanne M Donovan, et al.
Expert Review of Pharmacoeconomics & Outcomes Research
|
May 10, 2019
The evolving role of patient preference studies in health-care decision-making, from clinical drug development to clinical care management
Yanina Jackson, Ellen Janssen, Ryan Fischer, et al.
Orphanet Journal of Rare Diseases
|
February 22, 2025
The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey
John Jarvis, Elizabeth Chertavian, Marric Buessing, et al.
Transplantation
|
July 9, 2020
Big Data in Transplantation Practice-the Devil Is in the Detail-Fontan-associated Liver Disease
Michelle H Kim, Ailene Nguyen, Mary Lo, et al.
Journal of Pediatric Gastroenterology and Nutrition
|
July 13, 2022
Health Care Transition for Adolescents and Young Adults With Pediatric-Onset Liver Disease and Transplantation: A Position Paper by the North American Society of Pediatric Gastroenterology, Hepatology, and Nutrition
Jennifer Vittorio, Beverly Kosmach-Park, Lindsay Y King, et al.
Journal of Neuromuscular Diseases
|
February 16, 2024
Draft Guidance for Industry Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Related Dystrophinopathies - Developing Potential Treatments for the Entire Spectrum of Disease
Craig McDonald, Eric Camino, Rafael Escandon, et al.
Circulation
|
August 11, 2020
Fontan-Associated Liver Disease: Screening, Management, and Transplant Considerations
Juliet Emamaullee, Ali N Zaidi, Thomas Schiano, et al.
Plos One
|
May 3, 2019
Gene therapy as a potential therapeutic option for Duchenne muscular dystrophy: A qualitative preference study of patients and parents
Holly Landrum Peay, Ryan Fischer, Janice P Tzeng, et al.
Orphanet Journal of Rare Diseases
|
June 25, 2015
How a patient advocacy group developed the first proposed draft guidance document for industry for submission to the U.S. Food and Drug Administration
Pat Furlong, John F P Bridges, Lawrence Charnas, et al.
Chiropractic & Manual Therapies
|
December 10, 2025
Which lumbar spinal stenosis patients will improve with nonsurgical treatment? A secondary analysis of a randomized controlled trial
Eric J Roseen, Clair N Smith, Asifa Rahim, et al.
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of 8