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European Journal of Human Genetics : EJHG
|
April 7, 2016
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
Pauline McCormack, Anna Kole, Sabina Gainotti, et al.
Archives of Public Health = Archives Belges De Sante Publique
|
October 30, 2014
The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration
Domenica Taruscio, Emanuela Mollo, Sabina Gainotti, et al.
International Journal of Environmental Research and Public Health
|
September 26, 2018
Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues
Sabina Gainotti, Deborah Mascalzoni, Virginie Bros-Facer, et al.
Transplantation Proceedings
|
October 14, 2019
Organ Transplantation From Nonstandard Risk Donors: Midway Between Rigid and Flexible Rules
Carlo Petrini, Silvia Trapani, Luciana Riva, et al.
Drugs & Aging
|
May 12, 2012
How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia
Francesca Galeotti, Nicola Vanacore, Sabina Gainotti, et al.
Public Health Genomics
|
February 14, 2015
Rare disease registries classification and characterization: a data mining approach
Michele Santoro, Alessio Coi, Michele Lipucci Di Paola, et al.
Plos One
|
June 30, 2010
How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients
Sabina Gainotti, Susanna Fusari Imperatori, Stefania Spila-Alegiani, et al.
European Journal of Human Genetics : EJHG
|
February 11, 2016
Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
Sabina Gainotti, Cathy Turner, Simon Woods, et al.
Public Health Genomics
|
March 22, 2016
The Quality of Rare Disease Registries: Evaluation and Characterization
Alessio Coi, Michele Santoro, Ana Villaverde-Hueso, et al.
European Journal of Human Genetics : EJHG
|
February 4, 2018
The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers
Sabina Gainotti, Paola Torreri, Chiuhui Mary Wang, et al.
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Search research articles
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Showing results (11-20 of 22) with videos related to
Sort By:
Page
of 3
European Journal of Human Genetics : EJHG
|
April 7, 2016
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
Pauline McCormack, Anna Kole, Sabina Gainotti, et al.
Archives of Public Health = Archives Belges De Sante Publique
|
October 30, 2014
The EPIRARE proposal of a set of indicators and common data elements for the European platform for rare disease registration
Domenica Taruscio, Emanuela Mollo, Sabina Gainotti, et al.
International Journal of Environmental Research and Public Health
|
September 26, 2018
Meeting Patients' Right to the Correct Diagnosis: Ongoing International Initiatives on Undiagnosed Rare Diseases and Ethical and Social Issues
Sabina Gainotti, Deborah Mascalzoni, Virginie Bros-Facer, et al.
Transplantation Proceedings
|
October 14, 2019
Organ Transplantation From Nonstandard Risk Donors: Midway Between Rigid and Flexible Rules
Carlo Petrini, Silvia Trapani, Luciana Riva, et al.
Drugs & Aging
|
May 12, 2012
How legislation on decisional capacity can negatively affect the feasibility of clinical trials in patients with dementia
Francesca Galeotti, Nicola Vanacore, Sabina Gainotti, et al.
Public Health Genomics
|
February 14, 2015
Rare disease registries classification and characterization: a data mining approach
Michele Santoro, Alessio Coi, Michele Lipucci Di Paola, et al.
Plos One
|
June 30, 2010
How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients
Sabina Gainotti, Susanna Fusari Imperatori, Stefania Spila-Alegiani, et al.
European Journal of Human Genetics : EJHG
|
February 11, 2016
Improving the informed consent process in international collaborative rare disease research: effective consent for effective research
Sabina Gainotti, Cathy Turner, Simon Woods, et al.
Public Health Genomics
|
March 22, 2016
The Quality of Rare Disease Registries: Evaluation and Characterization
Alessio Coi, Michele Santoro, Ana Villaverde-Hueso, et al.
European Journal of Human Genetics : EJHG
|
February 4, 2018
The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers
Sabina Gainotti, Paola Torreri, Chiuhui Mary Wang, et al.
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of 3