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Frontiers in Medicine
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October 10, 2022
State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases
Leopoldo Trieste, Sara Cannizzo, Ilaria Palla, et al.
Clinical and Experimental Rheumatology
|
October 21, 2016
Health information technologies in systemic lupus erythematosus: focus on patient assessment
Chiara Tani, Leopoldo Trieste, Valentina Lorenzoni, et al.
Clinical and Experimental Rheumatology
|
November 26, 2020
One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases
Sara Cannizzo, Ilaria Palla, Salvatore Pirri, et al.
Orphanet Journal of Rare Diseases
|
February 21, 2024
The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review
Sara Cannizzo, Vinciane Quoidbach, Paola Giunti, et al.
RMD Open
|
November 30, 2018
Rare diseases under different levels of economic analysis: current activities, challenges and perspectives
Sara Cannizzo, Valentina Lorenzoni, Ilaria Palla, et al.
International Journal of Environmental Research and Public Health
|
November 26, 2020
Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider
Rosaria Talarico, Diana Marinello, Sara Cannizzo, et al.
Frontiers in Health Services
|
March 17, 2023
An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™
Rosaria Talarico, Diana Marinello, Sara Cannizzo, et al.
Orphanet Journal of Rare Diseases
|
December 15, 2020
RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks
Rosaria Talarico, Sara Cannizzo, Valentina Lorenzoni, et al.
Orphanet Journal of Rare Diseases
|
October 19, 2021
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey
Rosaria Talarico, Diana Marinello, Arianna Manzo, et al.
European Journal of Neurology
|
April 9, 2026
The Role of Digital Tools and Their Implementation Within Patient Care Pathways for Rare Brain Disorders: The Case of Phenylketonuria
Sara Cannizzo, Vinciane Quoidbach, Bernadette Sheehan-Gilroy, et al.
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of 2
Search research articles
Search
Showing results (1-10 of 16) with videos related to
Sort By:
Page
of 2
Frontiers in Medicine
|
October 10, 2022
State of the art and future directions in assessing the quality of life in rare and complex connective tissue and musculoskeletal diseases
Leopoldo Trieste, Sara Cannizzo, Ilaria Palla, et al.
Clinical and Experimental Rheumatology
|
October 21, 2016
Health information technologies in systemic lupus erythematosus: focus on patient assessment
Chiara Tani, Leopoldo Trieste, Valentina Lorenzoni, et al.
Clinical and Experimental Rheumatology
|
November 26, 2020
One year in review 2020: economic and organisational aspects in rare and complex connective tissue diseases
Sara Cannizzo, Ilaria Palla, Salvatore Pirri, et al.
Orphanet Journal of Rare Diseases
|
February 21, 2024
The COVID-19 pandemic impact on continuity of care provision on rare brain diseases and on ataxias, dystonia and PKU. A scoping review
Sara Cannizzo, Vinciane Quoidbach, Paola Giunti, et al.
RMD Open
|
November 30, 2018
Rare diseases under different levels of economic analysis: current activities, challenges and perspectives
Sara Cannizzo, Valentina Lorenzoni, Ilaria Palla, et al.
International Journal of Environmental Research and Public Health
|
November 26, 2020
Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider
Rosaria Talarico, Diana Marinello, Sara Cannizzo, et al.
Frontiers in Health Services
|
March 17, 2023
An Opportunity to Harmonise the Approach to Patients' Care Pathways for Rare and Complex Diseases: RarERN Path™
Rosaria Talarico, Diana Marinello, Sara Cannizzo, et al.
Orphanet Journal of Rare Diseases
|
December 15, 2020
RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks
Rosaria Talarico, Sara Cannizzo, Valentina Lorenzoni, et al.
Orphanet Journal of Rare Diseases
|
October 19, 2021
Being a caregiver of a Behçet's syndrome patient: challenges and perspectives during a complex journey
Rosaria Talarico, Diana Marinello, Arianna Manzo, et al.
European Journal of Neurology
|
April 9, 2026
The Role of Digital Tools and Their Implementation Within Patient Care Pathways for Rare Brain Disorders: The Case of Phenylketonuria
Sara Cannizzo, Vinciane Quoidbach, Bernadette Sheehan-Gilroy, et al.
Page
of 2