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Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|November 20, 2025
Patient-based evidence for amyotrophic lateral sclerosis prognostic health communication: "the clock is ticking…how long do I have?"Shelagh K Genuis, Westerly Luth, Brianna Adams, et al.
Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|September 16, 2022
Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALSMira Ahmad, Shelagh K Genuis, Westerly Luth, et al.
BMC Medical Research Methodology|October 6, 2023
Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learnedShelagh K Genuis, Westerly Luth, Garnette Weber, et al.
Frontiers in Neurology|August 23, 2021
Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical EvidenceShelagh K Genuis, Westerly Luth, Sandra Campbell, et al.
The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques|October 26, 2020
Transitions in Amyotrophic Lateral Sclerosis: Patient and Caregiver ExperiencesMatthew Munan, Westerly Luth, Shelagh K Genuis, et al.
Muscle & Nerve|September 10, 2021
Lung volume recruitment improves volitional airway clearance in amyotrophic lateral sclerosisStuart Cleary, John E Misiaszek, Sonya Wheeler, et al.
Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|March 23, 2024
Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS studyShelagh K Genuis, Westerly Luth, Claire Magnussen, et al.
The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics|April 18, 2019
Medical Information Commons to Support Learning Healthcare Systems: Examples From CanadaTania Bubela, Shelagh K Genuis, Naveed Z Janjua, et al.
BMJ Open|September 26, 2025
Challenges and opportunities for expediting ALS diagnosis in Alberta, Canada: a human-centred design approachNicole N Ofosu, Westerly Luth, Shelagh K Genuis, et al.
Plos One|December 4, 2025
Comprehensive analysis platform to understand, remedy, and eliminate amyotrophic lateral sclerosis (CAPTURE ALS): Study protocol for a Canadian multicenter, multimodal, longitudinal observational studyNatalie Saunders, Claire Magnussen, HyungMo Kang, et al.
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