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Chest|July 25, 2013
Rare diseases research: expanding collaborative translational research opportunitiesStephen C GroftOrphanet Journal of Rare Diseases|March 4, 2014
A past with uncertainty, a future with hope--rare disease day 2014 from a USA perspectiveStephen C GroftActa Paediatrica (Oslo, Norway : 1992)|June 9, 2021
Progress, challenges and global approaches to rare diseasesStephen C Groft, Manuel Posada, Domenica TaruscioAdvances in Experimental Medicine and Biology|September 9, 2010
Rare diseases - avoiding misperceptions and establishing realities: the need for reliable epidemiological dataStephen C Groft, Manuel Posada de la PazAdvances in Experimental Medicine and Biology|December 8, 2017
Rare Diseases: Joining Mainstream Research and Treatment Based on Reliable Epidemiological DataStephen C Groft, Manuel Posada de la PazAdvances in Experimental Medicine and Biology|December 8, 2017
Preparing for the Future of Rare DiseasesStephen C Groft, Manuel Posada de la PazAdvances in Experimental Medicine and Biology|December 8, 2017
A Global Approach to Rare Diseases Research and Orphan Products Development: The International Rare Diseases Research Consortium (IRDiRC)Christine M Cutillo, Christopher P Austin, Stephen C GroftJournal of General Internal Medicine|July 18, 2014
The Rare Diseases Clinical Research Network's organization and approach to observational research and health outcomes researchJeffrey P Krischer, Rashmi Gopal-Srivastava, Stephen C Groft, et al.Advances in Experimental Medicine and Biology|December 8, 2017
Undiagnosed Diseases: Italy-US Collaboration and International Efforts to Tackle Rare and Common Diseases Lacking a DiagnosisDomenica Taruscio, Giovanna Floridia, Marco Salvatore, et al.Molecular Genetics and Metabolism|November 25, 2015
Undiagnosed Diseases Network International (UDNI): White paper for global actions to meet patient needsDomenica Taruscio, Stephen C Groft, Helene Cederroth, et al.Pageof 3