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Frontiers in Medicine|April 17, 2023
The application of data altruism in clinical research through empirical and legal analysis lensesTeodora Lalova-Spinks, Janos Meszaros, Isabelle Huys
Frontiers in Medicine|February 5, 2026
The European Health Data Space: an opportunity to strengthen citizen rights and engage citizens in health data governancePatricia Cervera de la Cruz, Teodora Lalova-Spinks, Mahsa Shabani
Health Policy (Amsterdam, Netherlands)|September 12, 2025
Implementation of the European health data space: a qualitative study on expectations of health data experts from 23 countriesPatricia Cervera de la Cruz, Teodora Lalova-Spinks, Mahsa Shabani
NPJ Digital Medicine|August 16, 2024
EU-US data transfers: an enduring challenge for health research collaborationsTeodora Lalova-Spinks, Peggy Valcke, John P A Ioannidis, et al.
Frontiers in Psychology|March 23, 2026
Self-reported patient experiences in a peer-support community: What do cancer patients value?Florence Horicks, Teodora Lalova-Spinks, Silke Léonard, et al.
Frontiers in Pharmacology|March 6, 2024
Patients' knowledge, preferences, and perspectives about data protection and data control: an exploratory surveyTeodora Lalova-Spinks, Robbe Saesen, Mitchell Silva, et al.
Research Involvement and Engagement|July 2, 2026
What added value does Patient and Public Involvement (PPI) in oncology research bring to cancer patients and what are the challenges in realizing it? A mixed-methods cross-sectional study in four PPI groups in Flanders (Belgium)Brent Taels, Florence Horicks, Silke Léonard, et al.
Frontiers in Medicine|October 14, 2022
Rethinking informed consent in the time of COVID-19: An exploratory surveyEvelien De Sutter, Teodora Lalova-Spinks, Pascal Borry, et al.
Journal of Law and the Biosciences|May 20, 2026
Two-faced Janus? Consent to participate in research and consent to data processing in the EHDS era: a comparative analysis of requirements and standards in eight European countriesLuca Marelli, Ilaria Colussi, Irene Schlünder, et al.
Frontiers in Medicine|October 27, 2022
Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory studyTeodora Lalova-Spinks, Evelien De Sutter, Peggy Valcke, et al.
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