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Familial Cancer|March 29, 2024
Clinician perspectives on policy approaches to genetic risk disclosure in familiesAmicia Phillips, Danya F Vears, Ine Van Hoyweghen, et al.
Journal of Community Genetics|September 28, 2017
The challenges of the expanded availability of genomic information: an agenda-setting paperPascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, et al.
Genetics in Medicine : Official Journal of the American College of Medical Genetics|March 28, 2022
A review of normative documents on preimplantation genetic testing: Recommendations for PGT-PMaria Siermann, Olga Tšuiko, Joris Robert Vermeesch, et al.
Expert Review of Molecular Diagnostics|December 22, 2012
Why do participants enroll in population biobank studies? A systematic literature reviewHélène Nobile, Eric Vermeulen, Kristof Thys, et al.
Journal of Obstetric, Gynecologic, and Neonatal Nursing : JOGNN|November 23, 2016
Attitudes of European Geneticists Regarding Expanded Carrier ScreeningSandra Janssens, Davit Chokoshvili, Danya Vears, et al.
Health Policy (Amsterdam, Netherlands)|September 12, 2025
Implementation of the European health data space: a qualitative study on expectations of health data experts from 23 countriesPatricia Cervera de la Cruz, Teodora Lalova-Spinks, Mahsa Shabani
Frontiers in Medicine|February 5, 2026
The European Health Data Space: an opportunity to strengthen citizen rights and engage citizens in health data governancePatricia Cervera de la Cruz, Teodora Lalova-Spinks, Mahsa Shabani
European Journal of Human Genetics : EJHG|February 15, 2024
Ethical and social reflections on the proposed European Health Data SpaceCiara Staunton, Mahsa Shabani, Deborah Mascalzoni, et al.
European Journal of Medical Genetics|June 19, 2023
Disclosure of genetic risk in the family: A survey of the Flemish general populationAmicia Phillips, Iris Dewitte, Bo Debruyne, et al.
Journal of Bioethical Inquiry|January 11, 2023
Expanded Non-invasive Prenatal Testing (NIPT) : Can the Child's Right to an Open Future Help Set the Scope?Zoë Claesen, Neeltje Crombag, Lidewij Henneman, et al.
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