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Human Mutation|June 21, 2013
Reflecting on earlier experiences with unsolicited findings: points to consider for next-generation sequencing and informed consent in diagnosticsTessel Rigter, Lidewij Henneman, Ulf Kristoffersson, et al.Plos One|September 30, 2017
Clinicians' attitude towards family planning and timing of diagnosis in autosomal dominant polycystic kidney diseaseStéphanie De Rechter, Jonathan Kringen, Peter Janssens, et al.European Journal of Human Genetics : EJHG|January 26, 2012
Legislation on direct-to-consumer genetic testing in seven European countriesPascal Borry, Rachel E van Hellemondt, Dominique Sprumont, et al.European Journal of Pediatrics|September 9, 2018
Renal Replacement Therapy in children with severe developmental disability: guiding questions for decision-makingLore Willem, Noël Knops, Djalila Mekahli, et al.Frontiers in Medicine|October 27, 2022
Challenges related to data protection in clinical research before and during the COVID-19 pandemic: An exploratory studyTeodora Lalova-Spinks, Evelien De Sutter, Peggy Valcke, et al.European Journal of Human Genetics : EJHG|June 21, 2012
Developing a policy for paediatric biobanks: principles for good practiceKristien Hens, Carla E Van El, Pascal Borry, et al.BMC Medical Ethics|August 3, 2019
Model consent clauses for rare disease researchMinh Thu Nguyen, Jack Goldblatt, Rosario Isasi, et al.Journal of Medical Ethics|March 3, 2023
Sport-related concussion research agenda beyond medical science: culture, ethics, science, policyMike McNamee, Lynley C Anderson, Pascal Borry, et al.BMC Medical Ethics|May 1, 2021
Ethics review of big data research: What should stay and what should be reformed?Agata Ferretti, Marcello Ienca, Mark Sheehan, et al.European Journal of Human Genetics : EJHG|March 29, 2012
The changing landscape of genetic testing and its impact on clinical and laboratory services and research in EuropeRos Hastings, Guido de Wert, Brian Fowler, et al.Pageof 22