Showing results (11-20 of 41) with videos related to

Sort By:
Pageof 5
Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation|June 28, 2026
Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative studyMackenzie Bourke, Xuemin Zhu, Tiffany Boughtwood, et al.
Research Involvement and Engagement|November 29, 2024
"I just don't know enough": Australian perspectives on community involvement in health and medical researchFiona Russo, Isabella Sherburn, Keri Finlay, et al.
European Journal of Human Genetics : EJHG|June 6, 2023
Direct notification by health professionals of relatives at-risk of genetic conditions (with patient consent): views of the Australian publicJane M Tiller, Ami Stott, Keri Finlay, et al.
European Journal of Human Genetics : EJHG|December 20, 2024
Patients' perspectives regarding health professionals contacting their relatives about genetic risk directly (with patient consent)Jane Tiller, Keri Finlay, Evanthia O Madelli, et al.
Frontiers in Public Health|January 6, 2025
"Equity" in genomic health policies: a review of policies in the international arenaPrabhathi Basnayake Ralalage, Tala Mitchell, Claire Zammit, et al.
BMC Medical Ethics|May 22, 2021
Study protocol: the Australian genetics and life insurance moratorium-monitoring the effectiveness and response (A-GLIMMER) projectJane Tiller, Aideen McInerney-Leo, Andrea Belcher, et al.
American Journal of Human Genetics|July 5, 2019
Australian Genomics: A Federated Model for Integrating Genomics into HealthcareZornitza Stark, Tiffany Boughtwood, Peta Phillips, et al.
European Journal of Human Genetics : EJHG|May 11, 2023
Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testingJane Tiller, Andrew Bakshi, Grace Dowling, et al.
Journal of Paediatrics and Child Health|August 24, 2021
Paediatric genomic testing: Navigating genomic reports for the general paediatricianMargit Shah, Arthavan Selvanathan, Gareth Baynam, et al.
American Journal of Human Genetics|March 11, 2025
The expanding global genomics landscape: Converging priorities from national genomics programsCaitlin Howley, Matilda A Haas, Wadha A Al Muftah, et al.
Pageof 5