Search research articles
Contact Us
Filters
Showing results (1-10 of 16) with videos related to
Page
of 2
Sort By:
The Journal of Investigative Dermatology
|
June 15, 2012
Significance of patient registries for dermatological disorders
Mark P de Souza, Vanessa Rangel Miller
The Journal of Investigative Dermatology
|
January 18, 2013
Response to Horn et al
Mark P de Souza, Vanessa Rangel Miller
Plos Currents
|
March 31, 2012
DuchenneConnect Registry Report
Vanessa Rangel, Ann S Martin, Holly L Peay
Molecular Genetics and Metabolism Reports
|
September 10, 2019
An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
Therese Conner, Francesca Cook, Vivian Fernandez, et al.
Orphanet Journal of Rare Diseases
|
February 20, 2019
An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States
Therese Conner, Francesca Cook, Vivian Fernandez, et al.
Revista De Saude Publica
|
May 14, 2010
Intellectual production in collective health: epistemology and evidence from different traditions
Kenneth Rochel de Camargo, Claudia Medina Coeli, Rosângela Caetano, et al.
Plos One
|
June 24, 2017
Characterization and utilization of an international neurofibromatosis web-based, patient-entered registry: An observational study
Mindell Seidlin, Robert Holzman, Pamela Knight, et al.
Medical Education Online
|
January 3, 2022
Visibility & support for first generation college graduates in medicine
Abraham Gallegos, Lynn K Gordon, Gerardo Moreno, et al.
Human Mutation
|
July 17, 2015
GenomeConnect: matchmaking between patients, clinical laboratories, and researchers to improve genomic knowledge
Brianne E Kirkpatrick, Erin Rooney Riggs, Danielle R Azzariti, et al.
Contemporary Clinical Trials
|
November 1, 2011
Informed consent process for patient participation in rare disease registries linked to biorepositories
Yaffa R Rubinstein, Stephen C Groft, Sara Hull Chandros, et al.
Page
of 2
Search research articles
Search
Showing results (1-10 of 16) with videos related to
Sort By:
Page
of 2
The Journal of Investigative Dermatology
|
June 15, 2012
Significance of patient registries for dermatological disorders
Mark P de Souza, Vanessa Rangel Miller
The Journal of Investigative Dermatology
|
January 18, 2013
Response to Horn et al
Mark P de Souza, Vanessa Rangel Miller
Plos Currents
|
March 31, 2012
DuchenneConnect Registry Report
Vanessa Rangel, Ann S Martin, Holly L Peay
Molecular Genetics and Metabolism Reports
|
September 10, 2019
An online survey of burden of illness in families with mucopolysaccharidosis type II children in the United States
Therese Conner, Francesca Cook, Vivian Fernandez, et al.
Orphanet Journal of Rare Diseases
|
February 20, 2019
An online survey on burden of illness among families with post-stem cell transplant mucopolysaccharidosis type I children in the United States
Therese Conner, Francesca Cook, Vivian Fernandez, et al.
Revista De Saude Publica
|
May 14, 2010
Intellectual production in collective health: epistemology and evidence from different traditions
Kenneth Rochel de Camargo, Claudia Medina Coeli, Rosângela Caetano, et al.
Plos One
|
June 24, 2017
Characterization and utilization of an international neurofibromatosis web-based, patient-entered registry: An observational study
Mindell Seidlin, Robert Holzman, Pamela Knight, et al.
Medical Education Online
|
January 3, 2022
Visibility & support for first generation college graduates in medicine
Abraham Gallegos, Lynn K Gordon, Gerardo Moreno, et al.
Human Mutation
|
July 17, 2015
GenomeConnect: matchmaking between patients, clinical laboratories, and researchers to improve genomic knowledge
Brianne E Kirkpatrick, Erin Rooney Riggs, Danielle R Azzariti, et al.
Contemporary Clinical Trials
|
November 1, 2011
Informed consent process for patient participation in rare disease registries linked to biorepositories
Yaffa R Rubinstein, Stephen C Groft, Sara Hull Chandros, et al.
Page
of 2