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Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|March 23, 2024
Patient engagement in research: lessons learned from CAPTURE ALS, a longitudinal observational ALS studyShelagh K Genuis, Westerly Luth, Claire Magnussen, et al.
Archives of Neurology|August 16, 2006
Detection of cerebral degeneration in amyotrophic lateral sclerosis using high-field magnetic resonance spectroscopySanjay Kalra, Christopher C Hanstock, W R Wayne Martin, et al.
Death Studies|June 25, 2015
Attitudes Regarding Palliative Sedation and Death Hastening Among Swiss Physicians: A Contextually Sensitive ApproachRose-Anna Foley, Wendy S Johnston, Mathieu Bernard, et al.
BMJ Open|September 26, 2025
Challenges and opportunities for expediting ALS diagnosis in Alberta, Canada: a human-centred design approachNicole N Ofosu, Westerly Luth, Shelagh K Genuis, et al.
Patient Related Outcome Measures|July 2, 2021
Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation StudyNicole Peters, Vanina Dal Bello-Haas, Tara Packham, et al.
The Canadian Journal of Neurological Sciences. Le Journal Canadien Des Sciences Neurologiques|November 16, 2018
Provincial Differences in the Diagnosis and Care of Amyotrophic Lateral SclerosisVictoria L Hodgkinson, Josh Lounsberry, Ario Mirian, et al.
Plos One|December 4, 2025
Comprehensive analysis platform to understand, remedy, and eliminate amyotrophic lateral sclerosis (CAPTURE ALS): Study protocol for a Canadian multicenter, multimodal, longitudinal observational studyNatalie Saunders, Claire Magnussen, HyungMo Kang, et al.
Muscle & Nerve|March 2, 2026
Prospective Validation of the New PLS Diagnostic Criteria From PLS Natural History Study: EMG and Neurofilament AnalysesEric Sorenson, Daragh Heitzman, Ikjae Lee, et al.
Annals of Neurology|September 29, 2025
Primary Lateral Sclerosis Natural History Study: Primary Lateral Sclerosis Functional Rating Scale and Other Outcomes AssessmentIkjae Lee, Grace Jang, Ying Kuen Ken Cheung, et al.
Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration|December 28, 2022
Primary lateral sclerosis natural history study - planning, designing, and early enrollmentHiroshi Mitsumoto, Grace Jang, Ikjae Lee, et al.
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