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Contemporary Clinical Trials
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March 24, 2015
NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection
Yaffa R Rubinstein, Pamela McInnes
Contemporary Clinical Trials
|
July 7, 2010
Driving interest in consolidating resources for the creation of a global rare disease patient registry
Yaffa R Rubinstein, Stephen C Groft
Contemporary Clinical Trials
|
November 1, 2011
Informed consent and patient registry for the rare disease community: Editorial
Christine Grady, Yaffa R Rubinstein, Stephen C Groft
Advances in Experimental Medicine and Biology
|
December 8, 2017
Rare Disease Biospecimens and Patient Registries: Interoperability for Research Promotion, a European Example: EuroBioBank and SpainRDR-BioNER
Yaffa R Rubinstein, Manuel Posada de la Paz, Marina Mora
Advances in Experimental Medicine and Biology
|
December 8, 2017
Data Quality in Rare Diseases Registries
Yllka Kodra, Manuel Posada de la Paz, Alessio Coi, et al.
The FEBS Journal
|
November 11, 2005
Chromosomal protein HMGN1 modulates the expression of N-cadherin
Yaffa R Rubinstein, Takashi Furusawa, Jae-Hwan Lim, et al.
Contemporary Clinical Trials
|
November 1, 2011
Informed consent process for patient participation in rare disease registries linked to biorepositories
Yaffa R Rubinstein, Stephen C Groft, Sara Hull Chandros, et al.
Contemporary Clinical Trials
|
July 9, 2010
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
Yaffa R Rubinstein, Stephen C Groft, Ronald Bartek, et al.
JAMIA Open
|
January 11, 2021
The case for open science: rare diseases
Yaffa R Rubinstein, Peter N Robinson, William A Gahl, et al.
International Journal of Environmental Research and Public Health
|
August 8, 2018
Recommendations for Improving the Quality of Rare Disease Registries
Yllka Kodra, Jérôme Weinbach, Manuel Posada-de-la-Paz, et al.
Page
of 1
Search research articles
Search
Showing results (1-10 of 10) with videos related to
Sort By:
Page
of 1
Contemporary Clinical Trials
|
March 24, 2015
NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection
Yaffa R Rubinstein, Pamela McInnes
Contemporary Clinical Trials
|
July 7, 2010
Driving interest in consolidating resources for the creation of a global rare disease patient registry
Yaffa R Rubinstein, Stephen C Groft
Contemporary Clinical Trials
|
November 1, 2011
Informed consent and patient registry for the rare disease community: Editorial
Christine Grady, Yaffa R Rubinstein, Stephen C Groft
Advances in Experimental Medicine and Biology
|
December 8, 2017
Rare Disease Biospecimens and Patient Registries: Interoperability for Research Promotion, a European Example: EuroBioBank and SpainRDR-BioNER
Yaffa R Rubinstein, Manuel Posada de la Paz, Marina Mora
Advances in Experimental Medicine and Biology
|
December 8, 2017
Data Quality in Rare Diseases Registries
Yllka Kodra, Manuel Posada de la Paz, Alessio Coi, et al.
The FEBS Journal
|
November 11, 2005
Chromosomal protein HMGN1 modulates the expression of N-cadherin
Yaffa R Rubinstein, Takashi Furusawa, Jae-Hwan Lim, et al.
Contemporary Clinical Trials
|
November 1, 2011
Informed consent process for patient participation in rare disease registries linked to biorepositories
Yaffa R Rubinstein, Stephen C Groft, Sara Hull Chandros, et al.
Contemporary Clinical Trials
|
July 9, 2010
Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB)
Yaffa R Rubinstein, Stephen C Groft, Ronald Bartek, et al.
JAMIA Open
|
January 11, 2021
The case for open science: rare diseases
Yaffa R Rubinstein, Peter N Robinson, William A Gahl, et al.
International Journal of Environmental Research and Public Health
|
August 8, 2018
Recommendations for Improving the Quality of Rare Disease Registries
Yllka Kodra, Jérôme Weinbach, Manuel Posada-de-la-Paz, et al.
Page
of 1