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Marie Faughnan

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|Oct 21, 2024

Barriers and facilitators to designing, maintaining, and utilizing rare disease patient registries: a scoping review protocol.

Catherine Stratton, Andrew Taylor, Menelaos Konstantinidis

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Catherine Stratton

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Menelaos Konstantinidis

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Ian Stedman

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Martin Offringa

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Beth Potter

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Durhane Wong-Rieger

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Sarah Dyack

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Pavel Zhelnov

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Laura Rosella

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Andrea C Tricco

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Catherine Stratton

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Menelaos Konstantinidis

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Ian Stedman

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Martin Offringa

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