Victoria Hedley
3PUBLICATIONS
5CO-AUTHORS
Get your video featured.
Publish with JoVEGet your video featured.
Publish with JoVE
Publications (3)
Sort by Publication Date:
|Sep 05, 2023
Together4RD position statement on collaboration between European reference networks and industry.Victoria Hedley, Matt Bolz-Johnson, Ines Hernando
|Nov 05, 2022
Understanding paediatric data standards challenges through academia-industry partnerships: A conect4children (c4c) qualitative study.Anando Sen, Avril Palmeri, Joanne Lee
|May 05, 2021
Shaping national plans and strategies for rare diseases in Europe: past, present, and future.Victoria Hedley, Valentina Bottarelli, Ariane Weinman
Pageof 1
