Vanessa L Merker

18PUBLICATIONS
27CO-AUTHORS
Neurology and neuromuscular diseasesSensory systemsCancer geneticsPacific Peoples cultural determinants of healthImplementation science and evaluation
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Publications (18)

|Jul 18, 2026
Alienation in adults with NF1 and parents of children with NF1: A mixed methods study on mental health and primary care experiences.

|Jun 29, 2026
Development and Initial Validation of the Quality of life Evaluation in NF2-related Schwannomatosis Trials (QUEST) Assessment.

|Dec 16, 2025
"It's not any one thing, it's always all of them, all at the same time": quality of life in NF2-related schwannomatosis from patient and clinician perspectives.

Sophia C Carias, Frank D Buono, Liesel Von Imhof

|Apr 16, 2025
Self-reported access to specialty clinics and receipt of health surveillance among U.S. patients with neurofibromatosis 1: a national survey.

Vanessa L Merker, Yidan Ma, Lori B Chibnik

|Dec 23, 2023
Recommendations for assessing appearance concerns related to plexiform and cutaneous neurofibromas in neurofibromatosis 1 clinical trials.

Vanessa L Merker, Heather L Thompson, Pamela L Wolters

|Nov 14, 2023
Perspectives of adults with neurofibromatosis regarding the design of psychosocial trials: Results from an anonymous online survey.

Pamela L Wolters, Nour Al Ghriwati, Melissa Baker

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Frequent Collaborators

5 joint publications

Scott R Plotkin

3 joint publications

Pamela L Wolters

3 joint publications

Sophia C Carias

2 joint publications

Justin T Jordan