Search research articles

ABOUT JoVE

Overview Leadership Blog JoVE Help Center

AUTHORS

Publishing Process Editorial Board Scope & Policies Peer Review FAQ Submit

LIBRARIANS

Testimonials Subscriptions Access Resources Library Advisory Board FAQ

RESEARCH

JoVE Journal Methods Collections JoVE Encyclopedia of Experiments Archive

EDUCATION

JoVE Core JoVE Business JoVE Science Education JoVE Lab Manual Faculty Resource Center Faculty Site

Terms & Conditions of Use

Lara Bloom

3PUBLICATIONS

18CO-AUTHORS

Family careDisease surveillanceClinical social work practice

Featured researcher

Get your video featured.

Publish with JoVE

Featured researcher

Get your video featured.

Publish with JoVE

Publications (3)

Sort by Publication Date:

|Nov 24, 2023

Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals.

Holly Walton, Pei Li Ng, Amy Simpson

|Nov 25, 2021

Initial description and evaluation of EDS ECHO: An international effort to improve care for people with the Ehlers-Danlos syndromes and hypermobility spectrum disorders.

Jane R Schubart, Rebecca Bascom, Clair A Francomano

|Nov 06, 2021

The power of patient-led global collaboration.

Lara Bloom, Jane Schubart, Rebecca Bascom

Pageof 1

Frequent Collaborators

2 joint publications

Alan J Hakim

2 joint publications

Clair A Francomano

1 joint publications

Holly Walton

1 joint publications

Pei Li Ng

1 joint publications

Amy Simpson

1 joint publications

Lyn S Chitty

1 joint publications

Naomi J Fulop

1 joint publications

Amy Hunter

1 joint publications

Jennifer Jones

1 joint publications

Joe Kai

Frequent Collaborators

2 joint publications

Alan J Hakim

2 joint publications

Clair A Francomano

1 joint publications

Holly Walton

1 joint publications

Pei Li Ng

Top Related Videos

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack

Published on : May 15, 2020

Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography

Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography

Published on : Jan 27, 2023

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Published on : Apr 12, 2021

See more related videos

Top Related Videos

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack

Implementation of a Real-Time Psychosis Risk Detection and Alerting System Based on Electronic Health Records using CogStack

Published on : May 15, 2020

Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography

Hemodynamic Precision in the Neonatal Intensive Care Unit using Targeted Neonatal Echocardiography

Published on : Jan 27, 2023

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform

Published on : Apr 12, 2021

See more related videos