Yllka Kodra

6PUBLICATIONS
16CO-AUTHORS
Epidemiological methodsNeurogeneticsData qualityMultimorbidityCounselling, wellbeing and community services
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Publications (6)

|Feb 03, 2021
Reflections on the Importance of Cost of Illness Analysis in Rare Diseases: A Proposal.

Patrizio Armeni, Marianna Cavazza, Entela Xoxi

|Dec 16, 2020
Rare Pathogenic Copy Number Variation in the 16p11.2 (BP4-BP5) Region Associated with Neurodevelopmental and Neuropsychiatric Disorders: A Review of the Literature.

Natália Oliva-Teles, Maria Chiara de Stefano, Louise Gallagher

|Dec 01, 2020
The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes.

Salma R Ali, Jillian Bryce, Li En Tan

|Nov 26, 2020
Shaping the Future of Rare Diseases after a Global Health Emergency: Organisational Points to Consider.

Rosaria Talarico, Diana Marinello, Sara Cannizzo

|Aug 23, 2020
Social Economic Costs, Health-Related Quality of Life and Disability in Patients with Cri Du Chat Syndrome.

Yllka Kodra, Marianna Cavazza, Marta de Santis

|May 06, 2020
Primary Sclerosing Cholangitis: Burden of Disease and Mortality Using Data from the National Rare Diseases Registry in Italy.

Marco Carbone, Yllka Kodra, Adele Rocchetti

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Frequent Collaborators

2 joint publications

Domenica Taruscio

1 joint publications

Alessio Gerussi

1 joint publications

Vincenzo Ronca

1 joint publications

Annarosa Floreani