Marco Roos

13PUBLICATIONS
94CO-AUTHORS
Query processing and optimisationMedical molecular engineering of nucleic acids and proteinsData qualityRecordkeeping informaticsEpigenetics (incl. genome methylation and epigenomics)
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Publications (13)

|Oct 01, 2025
The FAIR journey of a patient-driven registry: Reflections and practical solutions from the Duchenne Data Platform FAIRification experience.

Nawel Lalout, Mark D Wilkinson, Dagmar Wandrei

|Jul 27, 2023
Machine learning in Huntington's disease: exploring the Enroll-HD dataset for prognosis and driving capability prediction.

Jasper Ouwerkerk, Stephanie Feleus, Kasper F van der Zwaan

|Apr 28, 2023
Personal Genomes in Practice: Exploring Citizen and Healthcare Professionals' Perspectives on Personalized Genomic Medicine and Personal Health Data Spaces Using a Mixed-Methods Design.

Judith Tommel, Daan Kenis, Nathalie Lambrechts

|Dec 14, 2022
Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries.

Bruna Dos Santos Vieira, César H Bernabé, Shuxin Zhang

|Apr 26, 2022
Applying the FAIR principles to data in a hospital: challenges and opportunities in a pandemic.

Núria Queralt-Rosinach, Rajaram Kaliyaperumal, César H Bernabé

|Sep 05, 2021
The de novo FAIRification process of a registry for vascular anomalies.

Karlijn H J Groenen, Annika Jacobsen, Martijn G Kersloot

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Frequent Collaborators

3 joint publications

Mark Wilkinson

3 joint publications

Annika Jacobsen

3 joint publications

Chris T Evelo

2 joint publications

Elisa J F Houwink