Svenja Litzkendorf

6PUBLICATIONS
18CO-AUTHORS
Recordkeeping informaticsDisease surveillanceEpigenetics (incl. genome methylation and epigenomics)Traditional Chinese medicine and treatmentsHuman information interaction and retrieval
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Publications (6)

|Jun 07, 2020
Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study.

Svenja Litzkendorf, Martin Frank, Ana Babac

|Sep 22, 2018
Metadata Correction: Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.

Svenja Litzkendorf, Tobias Hartz, Jens Göbel

|May 13, 2018
Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study.

Svenja Litzkendorf, Tobias Hartz, Jens Göbel

|Nov 22, 2017
Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians.

Ana Babac, Svenja Litzkendorf, Katharina Schmidt

|Jan 20, 2017
Rare Diseases on the Internet: An Assessment of the Quality of Online Information.

Frédéric Pauer, Svenja Litzkendorf, Jens Göbel

|Aug 27, 2016
Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases.

Frédéric Pauer, Jens Göbel, Holger Storf

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Frequent Collaborators

5 joint publications

Frédéric Pauer

5 joint publications

Johann-Matthias Graf von der Schulenburg

4 joint publications

Jens Göbel

4 joint publications

Holger Storf