Gabrielle Conecker

10PUBLICATIONS
31CO-AUTHORS
Infant and child healthMajor global burdens of diseasePacific Peoples youth and familyFamily careTesting, assessment and psychometrics
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Publications (10)

|Apr 01, 2026
From QI-disability to QID-12: creating a brief proxy-report measure of quality of life for children with intellectual disability.

Melissa K Licari, Andrew J O Whitehouse, Natasha N Ludwig

|Jan 14, 2026
Caregiver-reported quality of life in individuals with developmental and epileptic encephalopathy and other severe neurodevelopmental encephalopathies.

Natasha N Ludwig, Melissa K Licari, Mary Wojnaroski

|Sep 09, 2025
Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study.

Jessica Keeley, Zoe Skoda, Karen Utley

|May 15, 2025
Caregiver-reported meaningful change in functional domains for individuals with developmental and epileptic encephalopathy: A convergent mixed-methods design.

Jenny Downs, Sophie Haywood, Natasha N Ludwig

|Feb 24, 2025
Patient leadership and partnerships accelerate therapies for SCN8A and other developmental and epileptic encephalopathies.

Gabrielle Conecker, JayEtta Hecker, Michael F Hammer

|Jun 24, 2024
Patient-advocate-led global coalition adapting fit-for-purpose outcomes measures to assure meaningful inclusion of DEEs in clinical trials.

JayEtta Hecker, Gabrielle Conecker, Chere Chapman

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Frequent Collaborators

9 joint publications

JayEtta Z Hecker

6 joint publications

Natasha N Ludwig

6 joint publications

Jenny Downs

4 joint publications

Rebecca Hommer