Elisabeth Nyoungui
3PUBLICATIONS
30CO-AUTHORS

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Publications (3)
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|Nov 18, 2025
RareLink: scalable REDCap-based framework for rare disease interoperability linking international registries to FHIR and Phenopackets.Adam S L Graefe, Filip Rehburg, Samer Alkarkoukly
|May 19, 2025
Linking international registries to FHIR and Phenopackets with RareLink: a scalable REDCap-based framework for rare disease data interoperability.Adam S L Graefe, Filip Rehburg, Samer Alkarkoukly
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Frequent Collaborators
3 joint publications
Jana Zschüntzsch
2 joint publications
Adam S L Graefe
2 joint publications
Filip Rehburg
2 joint publications
Samer Alkarkoukly
2 joint publications
Daniel Danis
2 joint publications
Ana Grönke
2 joint publications
Miriam R Hübner
2 joint publications
Alexander Bartschke
2 joint publications
Thomas Debertshäuser
2 joint publications
Sophie A I Klopfenstein