Charlotte Engebrecht

5PUBLICATIONS
20CO-AUTHORS
Rural community developmentPacific Peoples and disabilityGene and molecular therapyMajor global burdens of diseaseNutritional epidemiology
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Publications (5)

|Jul 08, 2026
Development and Validation of a Novel, Disease-Specific, Caregiver-Reported Outcome Measure: The Duchenne Muscular Dystrophy Caregiver Reported-Health Index (DMDCR-HI).

|Mar 19, 2026
The Parkinson's Disease-Health Index: A novel, disease-specific patient-reported outcome measure.

Jamison Seabury, Jennifer Weinstein, Spencer Rosero

|Nov 26, 2025
Development and Validation of a Disease-Specific, Patient-Reported Outcome Measure: The Myotonic Dystrophy Type 2 Health Index.

Charlotte Engebrecht, Spencer Rosero, Jennifer Weinstein

|Dec 25, 2024
Patient- and Caregiver-Reported Impact of Symptoms in Alzheimer Disease, Mild Cognitive Impairment, and Dementia.

Jamison Seabury, Jennifer Weinstein, Anika Varma

|May 16, 2024
Friedreich Ataxia Caregiver-Reported Health Index: Development of a Novel, Disease-Specific Caregiver-Reported Outcome Measure.

Jamison Seabury, Anika Varma, Jennifer Weinstein

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Frequent Collaborators

5 joint publications

Chad Rydel Heatwole

3 joint publications

Nuran Dilek

2 joint publications

Jamison Seabury

2 joint publications

Anika Varma