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Grupos de apoyo para madres de niños con discapacidad: un estudio cuantitativo y cualitativo
Suzan Mitwalli1, Yoke Rabaia1, Hanna Kienzler2
1Institute of Community and Public Health, Birzeit University, Ramallah, occupied Palestinian territory.
Lancet (London, England)
|March 20, 2018
Resumen
Los grupos de apoyo comunitario para madres de niños con discapacidad mejoran el bienestar. Estos grupos ofrecen alivio del estrés y conexión social, fomentando un sentido de comunidad y reduciendo el aislamiento.
Área de la Ciencia:
- Salud de la Comunidad
- Apoyo psicosocial
- Estudios sobre la discapacidad
Sus antecedentes:
- Estableció un programa de rehabilitación basado en la comunidad en Cisjordania desde 2013.
- Diecinueve grupos de apoyo para madres de niños con discapacidad utilizan el enfoque multifamiliar (AMF).
- Apoyo técnico proporcionado por el Instituto de Salud Pública y Comunitaria y la Fundación para el Trauma de Guerra.
Objetivo del estudio:
- Mejorar el bienestar de las madres con hijos discapacitados.
- Construir redes de apoyo entre las familias vulnerables.
- Para mitigar el aislamiento social y el estigma a través de la AMF.
Principales métodos:
- Evaluación de métodos mixtos empleados: encuestas cuantitativas y entrevistas cualitativas en grupo.
- Se evaluó la satisfacción de la madre con la intervención MFA y los cambios de comportamiento autoinformados.
- Obtuvo la aprobación ética y el consentimiento informado de los participantes.
Principales resultados:
- El 64% de las madres reportaron alivio del estrés y disfrute de la participación en el grupo MFA.
- El 36% de las madres participaron en el intercambio de experiencias durante las sesiones grupales.
- Las madres asistían para resolver problemas prácticos, obtener el apoyo de la comunidad y asistir a reuniones beneficiosas.
Conclusiones:
- Los grupos de apoyo ofrecen un importante valor psicosocial para las madres de niños con discapacidad.
- El disfrute es clave para asistir regularmente y mejorar el bienestar materno.
- Las madres encontraron alivio del estrés y soluciones en un ambiente grupal de apoyo y confianza.
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