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Ethics in Research01:56

Ethics in Research

23.3K
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
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Community Based Intervention01:30

Community Based Intervention

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Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
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Archival Research01:40

Archival Research

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Some researchers gain access to large amounts of data without interacting with a single research participant. Instead, they use existing records to answer various research questions. This type of research approach is known as archival research. Archival research relies on looking at past records or data sets to look for interesting patterns or relationships. For example, a researcher might access the academic records of all individuals who enrolled in college within the past ten years and...
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Data Collection I01:30

Data Collection I

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Data collection gathers information needed to make accurate judgments about a patient's present condition. During a health history interview, subjective data is collected from the patient, their caregivers, or family members, and objective data is collected through observations and physical assessment. Patients are the primary source of subjective data. Thus information gathered from patients through interviews, observations, and physical examination is primary data. Secondary sources of...
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Data Collection II01:29

Data Collection II

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The nursing history captures and records the patient's health status, so that a care plan evolves to meet the patient's individual needs. The nursing health history is a part of the initial assessment. A comprehensive history covers all health dimensions and plays a significant role in the assessment process. A comprehensive history includes the patient's biographical information, reasons for seeking health care, expectations, present and past health history, medications, and...
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Ethical Standards II01:23

Ethical Standards II

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Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
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Updated: Aug 25, 2025

Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
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Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data

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El intercambio de datos y la investigación comprometida con la comunidad

Maya Sabatello1, Daphne O Martschenko2, Mildred K Cho2

  • 1Center for Precision Medicine and Genomics at the Department of Medicine, Columbia University Irving Medical Center; Division of Ethics, Department of Medical Humanities and Ethics, Columbia University Irving Medical Center; New York, NY 10032, USA.

Science (New York, N.Y.)
|October 13, 2022
PubMed
Resumen
Este resumen es generado por máquina.

El intercambio de datos científicos requiere un compromiso de responsabilidad compartida. Esto asegura prácticas éticas y resultados de investigación fiables en la comunidad científica.

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Área de la Ciencia:

  • Ciencia de los datos
  • Ética en la investigación
  • Integridad científica

Sus antecedentes:

  • El creciente volumen de datos científicos requiere prácticas sólidas de intercambio.
  • Los marcos existentes a menudo se centran en el acceso a los datos, pero pasan por alto las responsabilidades asociadas.
  • Garantizar el uso responsable de los datos es crucial para mantener la confianza pública en la ciencia.

Objetivo del estudio:

  • Resaltar el vínculo crítico entre el intercambio de datos y el intercambio de responsabilidades.
  • Abogar por marcos integrados que abarquen tanto el acceso a los datos como la administración ética de los mismos.
  • Promover una cultura de responsabilidad en la gestión de los datos científicos.

Principales métodos:

  • Revisión de la literatura sobre las políticas actuales de intercambio de datos y las directrices éticas.
  • Análisis de estudios de casos que ilustran los desafíos en la responsabilidad de los datos.
  • Desarrollo de un modelo conceptual para el intercambio y la responsabilidad de datos integrados.

Principales resultados:

  • El intercambio de datos sin marcos de responsabilidad claros puede conducir a un uso indebido y a infracciones éticas.
  • La aplicación de modelos de responsabilidad compartida mejora la integridad y la reproducibilidad de los datos.
  • El compromiso proactivo con las consideraciones éticas es vital para el intercambio sostenible de datos.

Conclusiones:

  • Los mandatos de intercambio de datos deben ir acompañados de directrices explícitas sobre el uso responsable de los datos.
  • Un cambio de paradigma hacia la responsabilidad compartida es esencial para el futuro de la investigación científica.
  • La adopción de marcos de responsabilidad integrales fortalecerá el ecosistema científico.