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Procedimiento de la primera Cumbre de Investigación en Cuidados Neuropalliativos (NeuroCARES)
C J Creutzfeldt1, J Bogetz1, C Candrian1
1Comprehensive Stroke Center at Harborview Medical Center, Department of Neurology, University of Washington Medical School, Seattle, WA USA.
Journal of pain and symptom management
|August 28, 2025
Resumen
La primera Cumbre de Investigación en Cuidados Neuropalliativos identificó las prioridades clave para avanzar en la atención de los trastornos neurológicos. Las áreas de enfoque incluyen la equidad, los métodos rigurosos, la participación de los socios de atención, los grandes datos, las métricas estandarizadas y el apoyo a la carrera temprana.
Área de la Ciencia:
- Neurología
- Cuidados paliativos
- Investigación en servicios de salud
Sus antecedentes:
- La atención neuropaliativa aborda las necesidades complejas de las personas con trastornos neurológicos graves y sus compañeros de cuidado.
- Los avances en la investigación de los cuidados neuropalliativos son cruciales para mejorar la calidad de vida.
Objetivo del estudio:
- Identificar y discutir los retos y oportunidades de la investigación en el ámbito de los cuidados neuropaliativos en la primera Cumbre de Investigación en Cuidados Neuropaliativos (NeuroCARES).
Principales métodos:
- Convocó a 80 investigadores transdisciplinarios, médicos y abogados.
- Se incluyeron mesas redondas, sesiones científicas y talleres de tutoría.
- Financiado por el Instituto Nacional de Trastornos Neurológicos y Accidentes Cerebrovasculares (NINDS).
Principales resultados:
- Se identificaron seis prioridades de investigación: abordar las desigualdades en el cuidado de la salud, aumentar el rigor metodológico, mejorar la participación de los socios de atención, utilizar grandes datos, desarrollar métricas estandarizadas y apoyar a los investigadores de carrera temprana.
- Enfatizó la necesidad de un enfoque biopsicosocial.
Conclusiones:
- La cumbre puso de relieve las áreas críticas para la investigación futura de la atención neuropalliativa.
- Un enfoque colaborativo y transdisciplinario es esencial para avanzar en el campo y mejorar los resultados de los pacientes.
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