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Herramientas de evaluación para la participación de los pacientes y el público en la investigación en salud: una

Signe Nissen¹, Anne Wettergren Karlsson², Birgitte Nørgaard³

¹Hospital Lillebaelt, Region of Southern Denmark, Vejle, Denmark.

|September 5, 2025

Resumen

Las herramientas de evaluación de la participación de los pacientes y del público en la investigación sanitaria a menudo se adaptan o crean para necesidades específicas. Los desafíos incluyen una baja participación de los investigadores y la necesidad de una mejor formación tanto para los investigadores como para los socios del PPI.

Área de la Ciencia:

Investigación en servicios de salud
Salud pública
Metodología de la investigación

Sus antecedentes:

La participación de los pacientes y el público es vital para la relevancia y la calidad de la investigación.
La evaluación sistemática de los IPP es esencial, pero carece de herramientas sólidas.
La investigación en salud requiere métodos eficaces para evaluar el IPP.

Objetivo del estudio:

Identificar y mapear las herramientas de evaluación de los IPP utilizadas en la investigación sanitaria.
Describir los resultados asociados con las evaluaciones de los IPP.
Comprender las prácticas actuales en la evaluación de la participación de los pacientes y del público.

Principales métodos:

Revisión del alcance siguiendo las directrices PRISMA-ScR.
Buscado en MEDLINE, Embase, CINAHL y Scopus (2021-2024).
Se incluyen los estudios que evalúan los IPP, independientemente de la validación de las herramientas.

Principales resultados:

Se incluyeron treinta estudios que revelaron herramientas de evaluación de IPP adaptadas o nuevas.
Se observaron resultados personales positivos para los socios del PPI (bienestar, habilidades).
Los desafíos incluyen la dinámica "nosotros contra ellos" y la necesidad de formación.

Conclusiones:

Las herramientas de evaluación de los IPP suelen ser específicas del contexto y adaptadas.
Las bajas tasas de respuesta de los investigadores y la preparación son desafíos clave.
La mejora de la formación es crucial para una evaluación y colaboración eficaces de los IPP.

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