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Salud Pública
Cíara O'Reilly1, Laura O'Philbin2
1The Alzheimer Society of Ireland, Dublin, Ireland.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
Resumen
Irlanda
Área de la Ciencia:
- Participación Pública y de Pacientes (PPI) en la Investigación sobre Demencia; Investigación de Servicios de Salud; Gerontología y Estudios sobre el Envejecimiento
Sus antecedentes:
- Los enfoques de Participación Pública de Personas (PPI) varían a nivel mundial debido a diferencias culturales y políticas.
- El modelo de Irlanda demuestra una participación efectiva y líder en la investigación de la demencia.
- Las instituciones de investigación, las organizaciones de pacientes y los financiadores en Irlanda valoran la PPI y la integran en la financiación.
Objetivo del estudio:
- Destacar el modelo distintivo de Irlanda para la Participación Pública de Personas (PPI) en la investigación de la demencia.
- Mostrar el papel del Equipo Asesor de Investigación sobre Demencia (DRAT) en el avance de la investigación y la política sobre la demencia.
- Proporcionar información para la comunidad de investigación internacional sobre la adaptación de estrategias exitosas de PPI.
Principales métodos:
- Estableció un sistema de apoyo nacional a través de PPI Ignite Ireland para la excelencia e innovación en PPI.
- Integró la PPI como una prioridad estratégica dentro de la Junta de Investigación en Salud y la Sociedad de Alzheimer de Irlanda (ASI).
- Formó el Equipo Asesor de Investigación sobre Demencia (DRAT) en 2019, compuesto por personas con demencia y cuidadores familiares.
Principales resultados:
- El DRAT influye en la investigación y la política organizativa, y colabora con los investigadores para diseñar estudios de impacto.
- Los ejemplos ilustran colaboraciones nacionales e internacionales exitosas, priorizando la relevancia, la efectividad y el impacto.
- El modelo de PPI de Irlanda enfatiza marcos estructurados, colaboración y desarrollo de capacidades para los contribuyentes de PPI.
Conclusiones:
- La integración de diversas experiencias vividas, ejemplificada por el DRAT, enriquece significativamente el proceso de investigación sobre la demencia.
- El enfoque de PPI de Irlanda, incluido el intercambio de conocimientos a través de reuniones y talleres en línea, ofrece información valiosa para la adaptación global.
- Los marcos estructurados de PPI y el desarrollo de capacidades empoderan a los contribuyentes y mejoran el papel de la PPI en la investigación y la política sobre la demencia.
Palabras clave:
Participación Pública de PersonasInvestigación sobre DemenciaModelo IrlandésInvestigación de Servicios de SaludEnvejecimientoMás Videos Relacionados
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