Video Experimental Relacionado
Updated: Jan 8, 2026
10:57
Determining Soil-transmitted Helminth Infection Status and Physical Fitness of School-aged Children
Published on: August 22, 2012
24.2K
Salud Pública
Olufisayo Oluyinka Elugbadebo1, Faithful Moposi Akintade2, Cynthia Olapeju Olawuyi3
1University College Hospital, Ibadan, Oyo, Nigeria.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
Resumen
La participación de los pacientes en la investigación sobre demencia es vital, pero desafíos como las expectativas no cumplidas y la mala comunicación obstaculizan la retención en países de ingresos bajos y medianos (PIM). Mejorar la transparencia y difundir los hallazgos son clave para estudios éticos e impactantes.
Área de la Ciencia:
- Gerontología
- Neurociencia
- Salud Pública
Sus antecedentes:
- El reclutamiento y la retención de participantes en la investigación, especialmente en adultos mayores, presentan desafíos significativos.
- Los países de ingresos bajos y medianos (PIM) enfrentan obstáculos únicos en la investigación sobre demencia debido a las expectativas no cumplidas de los participantes y la posible deserción.
- Comprender las experiencias de los participantes es crucial para mejorar la participación y las prácticas éticas en la investigación sobre demencia dentro de los PIM.
Objetivo del estudio:
- Explorar las experiencias y perspectivas de los participantes en la investigación sobre demencia en el suroeste de Nigeria.
- Identificar estrategias para mejorar la participación, retención y conducta ética de los participantes en la investigación sobre demencia en países de ingresos bajos y medianos (PIM).
- Abordar los desafíos específicos que enfrentan los participantes en la investigación sobre demencia en entornos con recursos limitados.
Principales métodos:
- Se empleó un enfoque narrativo cualitativo, utilizando entrevistas con informantes clave (KII) con 15 díadas familiares involucradas en estudios de demencia.
- Las entrevistas se llevaron a cabo entre enero y septiembre de 2024 en entornos comunitarios o clínicos en el suroeste de Nigeria.
- Se realizó un análisis temático de los datos de las entrevistas transcritas utilizando el software NVivo para identificar temas y patrones clave.
Principales resultados:
- Los participantes (de 64 a 86 años) informaron desafíos que incluyen la distancia, entrevistas largas, actividades exigentes, incentivos insuficientes y falta de participación en la planificación de la investigación.
- Las expectativas no cumplidas sobre el acceso a la atención médica y los tratamientos fueron una fuente de insatisfacción, junto con la mala comunicación de los hallazgos del estudio.
- A pesar de los desafíos, los participantes mostraron disposición para futuras investigaciones, valorando un mayor conocimiento sobre la demencia, actividades cognitivas y una difusión eficaz de los resultados.
Conclusiones:
- Alinear la investigación con un enfoque participativo del paciente es esencial para mejorar la satisfacción y la retención.
- Garantizar la transparencia, la compensación justa y la difusión eficaz de los hallazgos son fundamentales para una investigación ética e impactante en entornos con recursos limitados.
- Abordar las expectativas de los participantes y las brechas de comunicación puede fomentar la confianza y alentar la participación continua en la investigación sobre demencia.
Palabras clave:
participación del pacienteretención de pacientesinvestigación sobre demenciapaíses de ingresos bajos y medianosexpectativas no cumplidascomunicaciónprácticas éticasMás Videos Relacionados
09:33Visualizing Field Data Collection Procedures of Exposure and Biomarker Assessments for the Household Air Pollution Intervention Network Trial in India
Published on: December 23, 2022
2.6K
07:20Dried Blood Spot Collection of Health Biomarkers to Maximize Participation in Population Studies
Published on: January 28, 2014
37.1K
Videos de Conceptos Relacionados
01:30Primary Healthcare Services
1.9K
Primary care promotes wellness and prevents disease. This care includes health promotion, education, protection (such as immunizations), early disease screening, and environmental considerations. Settings providing this type of healthcare include physician offices, public health clinics, school nursing, and community health nursing.
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
In 1978, international leaders convened in Alma-Ata, Kazakhstan, for what would be a pivotal event in global health. The Alma-Ata Declaration was the first to call...
1.9K
01:26Levels of Health Promotion and Illness Prevention
14.1K
Health promotion allows a person to control the determinants of health, resulting in an improved health status. It enhances the quality of life and reduces premature deaths. Health promotion and illness prevention programs help people make beneficial choices to reduce the risk of disease and disabilities. There are three health promotion and illness prevention levels: primary, secondary, and tertiary prevention.
In primary prevention, actions taken before disease onset prevent the disease from...
In primary prevention, actions taken before disease onset prevent the disease from...
14.1K
01:30Preventive Healthcare Services
1.8K
Preventive healthcare services keep people healthy via frequent check-ups, screening, and counseling. They primarily aid in disease prevention rather than treating an acute or chronic illness. Preventive treatment also keeps individuals productive and energetic, allowing them to work well into their retirement years. Examples of preventive care services include:
1.8K
01:26Principles of Disease Surveillance
439
Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
439
01:17Healthcare Agencies II
1000
There are various healthcare agencies in the United States—some of which are managed by religious institutions and others by different government branches.
Parish nursing is a growing specialty nursing profession that focuses on holistic healthcare, health promotion, and illness prevention. It blends professional nursing practice with a health ministry, focusing on health and healing within the context of a Christian community. Parish nurses serve as health educators, referral sources,...
Parish nursing is a growing specialty nursing profession that focuses on holistic healthcare, health promotion, and illness prevention. It blends professional nursing practice with a health ministry, focusing on health and healing within the context of a Christian community. Parish nurses serve as health educators, referral sources,...
1000
01:26Methods Of Healthcare Delivery System
3.9K
At the different levels of the healthcare system, we see varying methods of healthcare used. These methods include managed care systems, case management, and primary healthcare.
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is...
Managed Care System:
The managed care system is designed to control the cost while maintaining the quality of care. The patient's care from admission to discharge is planned by the primary care provider or the case manager, also known as the gatekeeper. In a managed care system, the number of care providers is...
3.9K