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Salud Pública
Sathya Karunananthan1, Isabella Moroz2, Nalia Gurgel Juarez2
1University of Ottawa, Ottawa, ON, Canada.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 23, 2025
Resumen
La participación de comunidades desatendidas en la investigación sobre demencia es crucial para comprender sus necesidades únicas y mejorar la atención. Los métodos participativos de codesarrollo ayudan a cerrar brechas, asegurando que las diversas voces sean incluidas y valoradas en la investigación de la enfermedad de Alzheimer.
Área de la Ciencia:
- Equidad en Salud
- Investigación sobre Demencia
- Determinantes Sociales de la Salud
Sus antecedentes:
- Los determinantes sociales como la raza y el estatus socioeconómico impactan el riesgo de demencia y el acceso a la atención.
- Las comunidades desatendidas están subrepresentadas en los estudios sobre demencia, lo que crea lagunas de conocimiento.
- Abordar estas disparidades requiere una participación y prácticas de investigación inclusivas.
Objetivo del estudio:
- Explorar los desafíos en la participación de poblaciones desatendidas en la investigación sobre demencia.
- Presentar estrategias basadas en evidencia para la participación inclusiva y el codesarrollo.
- Mejorar la representación y asegurar que se satisfagan las necesidades de atención de las comunidades diversas.
Principales métodos:
- Revisión de experiencias de investigación participativa.
- Desarrollo de metodologías de investigación inclusivas y codesarrolladas.
- Estudio de caso: Codesarrollo de guías de entrevista y reclutamiento para la investigación de eConsultas con díadas de pacientes con demencia y cuidadores diversos.
Principales resultados:
- Identificados desafíos en la participación de poblaciones diversas con demencia.
- Demostrada la efectividad del codesarrollo participativo para fomentar la inclusividad.
- Recopiladas con éxito perspectivas de grupos racial y económicamente diversos sobre las eConsultas.
Conclusiones:
- El codesarrollo participativo es vital para la investigación inclusiva sobre demencia.
- Los enfoques colaborativos mejoran la representación y abordan las necesidades específicas de la comunidad.
- Fomentar la colaboración internacional avanza la equidad en la investigación y atención de la enfermedad de Alzheimer y demencias relacionadas.
Palabras clave:
equidad en saludinvestigación sobre demenciadeterminantes sociales de la saludcomunidades desatendidascodesarrollo participativoenfermedad de AlzheimerMás Videos Relacionados
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