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Investigación sobre atención a la demencia y factores psicosociales
Kate Irving1, Br John-Richard Pagan2, Fernando Aguzzoli Peres3
1Dublin City University, Dublin, Ireland.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 25, 2025
Resumen
Walking the Talk for Dementia (WTD) redujo el estigma al fomentar la comunidad y el autoconocimiento entre los participantes. Las personas con demencia obtuvieron empoderamiento, redefiniéndose más allá del estigma y mejorando el conocimiento sobre la defensa de sus derechos.
Área de la Ciencia:
- Gerontología; Ciencias Sociales; Salud Pública
Sus antecedentes:
- La reducción del estigma es un objetivo clave en las estrategias de demencia.
- El estigma público y el autoestigma impactan negativamente a las personas que viven con demencia (PLWD) y a sus compañeros de cuidado.
- El miedo y el temor a la pérdida del yo contribuyen al estigma.
Objetivo del estudio:
- Explorar las percepciones del estigma entre los participantes en Walking the Talk for Dementia (WTD) 2024.
- Investigar la evolución de la desestigmatización durante y después del evento.
- Identificar temas relacionados con el cambio de percepciones y el autoconocimiento.
Principales métodos:
- Se combinaron enfoques de investigación cuantitativa y cualitativa.
- Se integraron datos de encuestas y comentarios reflexivos individuales sobre el estigma.
- Se evaluó el impacto de WTD en la comprensión y la defensa de los derechos de los participantes.
Principales resultados:
- Seis subtemas emergieron: percepciones cambiantes de los médicos, creación de comunidad y personas que viven con demencia (PLWD) encontrando significado.
- Los participantes informaron mejoras significativas en el conocimiento sobre el impacto de la demencia (4.59/5) y la defensa de los derechos (4.49/5).
- El evento facilitó el autoconocimiento y el empoderamiento, permitiendo a los participantes redefinirse.
Conclusiones:
- WTD proporciona un marco para abordar el miedo subyacente al estigma de la demencia.
- El aprendizaje y las experiencias colectivas disminuyeron las palabras y acciones estigmatizantes.
- Los participantes obtuvieron el empoderamiento para redefinirse, libres de estigma.
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