Video Experimental Relacionado
Updated: Jan 7, 2026
08:34
Proton Therapy Delivery and Its Clinical Application in Select Solid Tumor Malignancies
Published on: February 6, 2019
20.9K
No vistos, implacables e inciertos: objetivos identificados por los cuidadores para los cuidados paliativos
Amy S Porter1, Mikhaila Layshock2, Jori Bogetz3
1Division of Supportive and Palliative Care, Department of Pediatrics, Mass General for Children, Massachusetts General Hospital, Boston, MA; Department of Pediatrics, Harvard Medical School, Boston, MA.
Journal of pain and symptom management
|December 25, 2025
Resumen
La atención paliativa pediátrica (PPC) puede abordar los desafíos clave que enfrentan los padres de niños con complejidad médica (CMC). La identificación de estos desafíos, que incluyen sentirse no vistos, responsabilidades de cuidado implacables e incertidumbre, ofrece palancas para intervenciones de PPC específicas.
Área de la Ciencia:
- Atención Paliativa Pediátrica
- Complejidad Médica Infantil
- Apoyo al Cuidador
Sus antecedentes:
- Los cuidadores de padres de niños con complejidad médica (CMC) brindan atención extensa y a largo plazo.
- La creciente población de CMC representa una parte significativa de los pacientes de atención paliativa pediátrica (PPC).
- Los médicos de PPC pueden ofrecer un apoyo único a estos padres.
Objetivo del estudio:
- Identificar los desafíos que enfrentan los cuidadores de padres de CMC.
- Determinar qué desafíos se abordan mejor con la experiencia en PPC, particularmente en la comunicación.
- Informar el desarrollo de servicios de PPC para cuidadores de padres de CMC.
Principales métodos:
- Análisis cualitativo secundario de entrevistas semiestructuradas con 19 cuidadores de padres de CMC.
- Se utilizó un análisis temático para identificar los desafíos del cuidado.
- Se sintetizaron los temas para informar las intervenciones de PPC y un marco conceptual.
Principales resultados:
- Surgieron tres temas principales de desafíos: ser ignorado, responsabilidades de cuidado implacables e incertidumbre (las "3U").
- Estos desafíos se manifestaron a nivel personal, del sistema de salud y comunitario.
- Los niños a menudo tenían afecciones crónicas complejas (neurológicas, gastrointestinales, respiratorias), requerían tecnología médica y dependían de Medicaid.
Conclusiones:
- Los padres de CMC experimentan una angustia significativa relacionada con las "3U" del cuidado.
- Estos temas proporcionan áreas clave en las que los médicos deben centrarse al apoyar a los cuidadores de padres.
- Los conjuntos de habilidades específicos de PPC se pueden utilizar de manera óptima para apoyar a los cuidadores de padres de CMC.
Más Videos Relacionados
Videos de Conceptos Relacionados
01:25Continuing Care
1.8K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.8K
02:57Targeted Cancer Therapies
8.6K
The targeted cancer therapies, also known as “molecular targeted therapies,” take advantage of the molecular and genetic differences between the cancer cells and the normal cells. It needs a thorough understanding of the cancer cells to develop drugs that can target specific molecular aspects that drive the growth, progression, and spread of cancer cells without affecting the growth and survival of other normal cells in the body.
There are several types of targeted therapies against...
There are several types of targeted therapies against...
8.6K
01:30Specialized Care Centers and Settings-I
1.4K
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
1.4K
01:27Ethical Issues
2.0K
Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Concerns in Healthcare:
2.0K
01:27Nursing Ethical Principles II
2.0K
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
2.0K
01:13Patient-centered Care
2.8K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.8K