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Investigación sobre demencia y factores psicosociales
Carrie A McAiney1,2, Navjot Gill-Chawla1,2, Emma Bender2
1University of Waterloo, Waterloo, ON, Canada.
Alzheimer's & dementia : the journal of the Alzheimer's Association
|December 26, 2025
Resumen
Este estudio presenta una nueva guía para ayudar a los investigadores a realizar investigaciones inclusivas sobre la demencia con comunidades etnorraciales. El recurso tiene como objetivo promover asociaciones respetuosas y abordar las brechas de diversidad en la investigación sobre la demencia.
Área de la Ciencia:
- Gerontología
- Salud Pública
- Sociología
Sus antecedentes:
- La investigación sobre la demencia carece de diversidad, ya que los participantes no reflejan la composición etnorracial de las poblaciones afectadas.
- Los recursos existentes son insuficientes para guiar a los investigadores en la realización de estudios de demencia con comunidades diversas.
- La falta de orientación corre el riesgo de ser un mero formalismo, prácticas insensibles y daños a las comunidades etnorraciales.
Objetivo del estudio:
- Presentar la "Guía de Investigación Inclusiva: Colaboración con Personas con Demencia de Comunidades Etnorraciales".
- Proporcionar a los investigadores un recurso co-diseñado para realizar investigaciones inclusivas sobre la demencia.
- Apoyar la participación ética y efectiva con comunidades etnorraciales en la investigación sobre la demencia.
Principales métodos:
- Un Comité Directivo diverso, que incluye personas con demencia y representantes de la comunidad, co-diseñó la guía durante 1,5 años.
- Los métodos incluyeron una revisión de la literatura, reuniones periódicas del comité y un simposio con partes interesadas para obtener comentarios.
- Los comentarios de los participantes y una revisión adicional de la literatura informaron el contenido final de la guía.
Principales resultados:
- La Guía ofrece herramientas para que los investigadores examinen sesgos y aprendan sobre la historia y el trauma de las comunidades.
- Proporciona estrategias para construir confianza y relaciones con comunidades diversas.
- El recurso aborda la dinámica de equipo y las consideraciones del proceso de investigación para una investigación inclusiva.
Conclusiones:
- Se espera que la "Guía de Investigación Inclusiva" fomente prácticas de investigación sobre la demencia más seguras e inclusivas.
- Tiene como objetivo mejorar la representación y la participación de las comunidades etnorraciales en la investigación sobre la demencia.
- La guía promueve consideraciones éticas y enfoques centrados en la comunidad en la investigación.
Palabras clave:
demenciainvestigación inclusivacomunidades etnorracialesguía para investigadoresfactores psicosocialesMás Videos Relacionados
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