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Inclusión de experiencias de pacientes de fuentes en línea en las directrices: Un estudio de procesamiento del
Lea Lösch1, Carolina J G Kampman2, Elena Syurina1
1Athena Institute, Faculty of Science, Vrije Universiteit Amsterdam, The Netherlands.
PloS one
|January 6, 2026
Resumen
Los métodos de procesamiento del lenguaje natural (PLN) pueden analizar eficazmente las experiencias de los pacientes de las comunidades de salud en línea para mejorar las directrices de salud pública. Este enfoque proporciona información valiosa sobre las necesidades de los pacientes, mejorando la relevancia y aplicabilidad de las directrices.
Área de la Ciencia:
- Salud Pública
- Informática de la Salud
- Atención Centrada en el Paciente
Sus antecedentes:
- La integración de la experiencia del paciente en el desarrollo de directrices mejora la calidad y la relevancia.
- La inclusión significativa de las experiencias de los pacientes sigue siendo un desafío en las prácticas actuales.
- Se necesitan métodos novedosos para acceder y utilizar el conocimiento experiencial del paciente.
Objetivo del estudio:
- Demostrar el Procesamiento del Lenguaje Natural (PLN) como una herramienta innovadora para el desarrollo de directrices.
- Obtener información sobre el conocimiento experiencial de los pacientes sobre la sarna.
- Incorporar las experiencias de los pacientes en el proceso de desarrollo de directrices.
Principales métodos:
- Análisis de 5781 publicaciones de pacientes sobre la sarna de "dokter.nl" (diciembre de 2014 - mayo de 2023).
- Se utilizó el Modelado de Temas Estructurales para identificar clústeres temáticos en las experiencias de los pacientes.
- Se aplicaron técnicas de PLN para extraer y sintetizar información reportada por los pacientes.
Principales resultados:
- Se identificaron 13 temas principales en las discusiones de los foros de pacientes.
- Los temas predominantes incluyeron el apoyo de la comunidad, la incertidumbre del tratamiento y el manejo de la picazón.
- Se destacó la importante carga psicosocial de la sarna y su tratamiento, lo que informó las revisiones de las directrices.
Conclusiones:
- El PLN ofrece un método novedoso y accesible para incorporar el conocimiento experiencial del paciente en las directrices médicas.
- Este enfoque mejora el desarrollo de directrices sin suponer una carga adicional para los pacientes.
- El estudio integró con éxito los conocimientos de los pacientes en la directriz de salud pública holandesa para la sarna.
Palabras clave:
sarnadirectrices de salud públicaprocesamiento del lenguaje naturalexperiencias de pacientessalud digitalMás Videos Relacionados
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