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Educación terapéutica del paciente a través de tecnología digital: Recomendaciones para pediatría y dermatología

H Dufresne¹, C Godot², J Mashiah³

¹Department of Dermatology, Reference Centre for Genodermatoses and Rare skin Diseases (MAGEC-Necker), Filière Maladies Rares Dermatologiques (FIMARAD), ERN-Skin, Hôpital Universitaire Necker - Enfants Malades, Assistance Publique - Hôpitaux de Paris-Centre (AP-HP5), Paris, France; Pediatric social Services, Hôpital Universitaire Necker-Enfants Malades, Assistance Publique - Hôpitaux de Paris-Centre (AP-HP5), Paris, France; Therapeutic Education Group of the French Society of Dermatology, France.

Annales de dermatologie et de venereologie

|January 8, 2026

Resumen

La educación terapéutica digital del paciente (e-TPE) en pediatría ofrece un mayor acceso y participación para familias y profesionales. Las consideraciones clave para programas de e-TPE exitosos incluyen la edad del participante, la alfabetización técnica y las preocupaciones sobre la privacidad.

Área de la Ciencia:

Atención sanitaria pediátrica
Intervenciones de salud digital
Manejo de enfermedades crónicas

Sus antecedentes:

La educación terapéutica del paciente (TPE) es crucial para el manejo de enfermedades crónicas pediátricas.
La pandemia de COVID-19 impulsó la adopción de la TPE digital (e-TPE).
Actualmente, carece un marco definido para una e-TPE eficaz.

Objetivo del estudio:

Identificar aspectos organizativos y operativos clave de los programas pediátricos de e-TPE.
Recopilar información de pacientes, padres y profesionales de la salud sobre la e-TPE.
Informar el desarrollo de mejores prácticas para la educación terapéutica digital del paciente.

Principales métodos:

Estudio prospectivo, monocéntrico que involucra a adolescentes con afecciones crónicas de la piel, sus padres y profesionales de la salud.
Recopilación de datos a través de sesiones individuales con pacientes/padres y cuestionarios para profesionales.
Análisis cualitativo de la retroalimentación de los participantes sobre las experiencias de e-TPE remota.

Principales resultados:

Preferencia abrumadora por sesiones remotas de e-TPE entre padres, pacientes y profesionales de la salud.
El entorno del hogar impacta positivamente en el proceso de aprendizaje de la e-TPE.
Los desafíos técnicos y las preocupaciones de privacidad (especialmente para los profesionales) se identificaron como obstáculos importantes.

Conclusiones:

Las herramientas digitales mejoran la accesibilidad de la TPE, superando las barreras geográficas y de programación.
La edad del participante influye en el tiempo de pantalla, la concentración y las dificultades técnicas en la e-TPE.
Abordar la alfabetización digital, la privacidad y la confidencialidad es esencial para la implementación exitosa de la e-TPE.

Palabras clave:

Dermatología Educación terapéutica digital del paciente Oportunidades Pediatría Fortalezas Debilidades

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