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Updated: Jan 13, 2026

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Más allá del conjunto de datos: integrando voces públicas en la ciencia de datos

Ana-Paula Rubio1, Janette Dunn2, Janice Borthwick2

  • 1Centre for Medical Informatics, University of Edinburgh, Edinburgh, UK. arubio@ed.ac.uk.

Research involvement and engagement
|January 8, 2026
PubMed
Resumen

La participación e implicación de pacientes y público (PPIE) es crucial para la calidad de la investigación en salud. Este artículo reflexiona sobre los desafíos en la implementación de PPIE dentro de consorcios de investigación de ciencia de datos a gran escala como SCONe.

Palabras clave:
Co-desarrolloCiencia de datosInvestigación a gran escalaParticipación de pacientes y públicoParticipación e implicación de pacientes y público (PPIE)Participación públicaConfianza públicaImagen de la retinaSCONe

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