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Evaluación de Hospice@Home para Cuidados Paliativos a Domicilio: Estudio Piloto de Desarrollo y Usabilidad
So-Hi Kwon1, Mikyoung Angela Lee2, Young-Joo Kim1
1Research Institute of Nursing Innovation, College of Nursing, Kyungpook National University, 80, Daehak-ro, Buk-gu, Daegu, 41566, Republic of Korea, 82 10-8564-5345.
JMIR formative research
|January 21, 2026
Resumen
Este estudio piloto desarrolló Hospice@Home, una herramienta digital para cuidados paliativos a domicilio. Los resultados preliminares muestran que es usable y factible para pacientes con cáncer terminal y sus cuidadores, mejorando la tranquilidad y la conexión con la atención.
Área de la Ciencia:
- Salud Digital
- Cuidados Paliativos
- Atención Sanitaria a Domicilio
Sus antecedentes:
- Aumento de la demanda de cuidados paliativos debido al envejecimiento de la población y las enfermedades crónicas.
- Acceso limitado a cuidados paliativos oportunos, especialmente para pacientes de cuidados paliativos domiciliarios en zonas rurales.
- Las tecnologías de salud digital ofrecen potencial para mejorar la prestación de cuidados domiciliarios y la comunicación.
Objetivo del estudio:
- Desarrollar el sistema Hospice@Home, una solución digital para cuidados paliativos en el hogar.
- Evaluar la usabilidad y factibilidad preliminares de Hospice@Home para pacientes con cáncer terminal y sus cuidadores.
- Identificar desafíos para la implementación futura de soluciones digitales de cuidados paliativos a domicilio.
Principales métodos:
- Enfoque de diseño centrado en el ser humano y basado en la evidencia para el desarrollo del sistema.
- Pruebas alfa con pacientes simulados para la evaluación de la funcionalidad.
- Prueba beta de 3 semanas con 5 díadas de paciente-cuidador para la evaluación de usabilidad y factibilidad.
Principales resultados:
- Hospice@Home integra datos de bioseñales portátiles y autoinformes del paciente para una monitorización integral de los síntomas.
- Los pacientes y cuidadores informaron sentirse más tranquilos y conectados con el apoyo clínico.
- Las calificaciones de satisfacción de usabilidad promediaron 3.3 para los pacientes y 4.0 para los cuidadores (escala de 5 puntos); el cumplimiento de las tareas fue alto.
- Los desafíos identificados incluyen la fatiga al ingresar datos, las barreras psicológicas y la preferencia por la comunicación telefónica.
Conclusiones:
- Hospice@Home demuestra usabilidad y factibilidad iniciales para los cuidados paliativos a domicilio.
- Los hallazgos preliminares sugieren un valor potencial en el apoyo a pacientes con cáncer terminal y sus cuidadores.
- Se necesita un mayor refinamiento y pruebas iterativas para confirmar la efectividad y el impacto clínico.
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