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Lecciones prácticas para aprovechar las redes sociales en la investigación de la salud a través de la donación de

Leo Thorbecke^1,2, Anish K Agarwal^2,3,4, Sharath Chandra Guntuku^1,2,4

¹Department of Computer and Information Science, University of Pennsylvania, Philadelphia, PA USA.

npj digital public health

|February 4, 2026

Resumen

Los datos de las redes sociales son valiosos para la investigación de la salud, pero el acceso está disminuyendo. Este estudio ofrece cuatro estrategias, incluida la donación de datos, para superar los cambios en las plataformas y los desafíos de disponibilidad de datos para futuras investigaciones.

Área de la Ciencia:

Salud Pública
Salud Digital
Ciencia de Datos

Sus antecedentes:

Las plataformas de redes sociales proporcionan datos a gran escala y en tiempo real valiosos para la investigación de la salud.
Las crecientes restricciones de las plataformas amenazan la continuidad de la investigación de la salud basada en redes sociales.
La evolución de las plataformas y las fluctuaciones en la disponibilidad de datos presentan desafíos significativos.

Objetivo del estudio:

Identificar y presentar estrategias pragmáticas para acceder y utilizar datos de redes sociales en la investigación de la salud.
Abordar los desafíos que plantean los cambios en las plataformas y la disponibilidad de datos.
Promover el uso de la donación de datos como una estrategia clave.

Principales métodos:

Se describieron los desafíos en el acceso y uso de datos de redes sociales.
Se propusieron cuatro estrategias pragmáticas para la adquisición y utilización de datos.
Se centró en la donación de datos como un enfoque viable.

Principales resultados:

Identificó el dinamismo de la plataforma y la disponibilidad de datos como barreras clave para la investigación.
Esbozó cuatro estrategias factibles para mitigar estos desafíos.
Destacó la donación de datos como una solución potencial para la investigación sostenida.

Conclusiones:

Las redes sociales siguen siendo una fuente de datos fundamental para la salud pública.
Son necesarias estrategias proactivas para garantizar el acceso continuo a los datos de las redes sociales.
Los modelos de donación de datos ofrecen un camino prometedor para la futura investigación de la salud en redes sociales.

Palabras clave:

Investigación médica Salud pública

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